tag:blogger.com,1999:blog-6993740852730466692.post3232794393744266210..comments2024-03-27T21:04:55.416-07:00Comments on Regina Holliday's Medical Advocacy Blog: Never EnoughRegina Hollidayhttp://www.blogger.com/profile/14067714192642008661noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6993740852730466692.post-60928824807651759972011-07-15T22:49:52.798-07:002011-07-15T22:49:52.798-07:00Thank you for sharing this heart wrenching story o...Thank you for sharing this heart wrenching story of your beautiful son and the way you were all treated by the 'system' and the people in it. My god we need stories like yours to be told and shared. If ever the health system is to become truly healthy, we must face and expose our underbelly. I am horrified that you were offered money to keep silent - thank goodness you didn't take it. I see so many of these situations settled 'out of court' and while I thought that happened because the parents were exhausted from the incredible pain that comes with such a process, I had not known that such a settlement meant a 'gag' clause. I am very sad that the 'powers that be' can't see the supreme value in exploring, with parents, what went wrong so that they could ensure appropriate and required change in their processes and better communication. Thank you again for your courage.Thinkbirthhttps://www.blogger.com/profile/09813359204378047414noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-32106806212170260622011-07-04T17:19:11.359-07:002011-07-04T17:19:11.359-07:00What a powerful moving touching story. We often tu...What a powerful moving touching story. We often turn medical errors over to the legal system when what many people really want and need are explanations and apologies and changes so that it never happens again. <br /><br />Recently here in Seattle there were a couple of deaths due to medical errors at our regional Children's hospital. In one case a nurse who had worked there over 27 years gave an overdose of a medication to a baby who later died. She was fired and then a few months later she died from suicide herself. http://seattletimes.nwsource.com/html/localnews/2014830569_nurse21m.html<br /><br />Neither patients, family members or providers can afford a healthcare system based on mis-trust, patriarchal mind sets or lawyers calling the shots. <br /><br />What happened to you was one of the most painful tragedies anyone can endure and my heart goes out to you. I hope that opening this "box" of pain will help to move us all towards a healing care system that includes parents and family members fully. <br /><br />Sherry Reynolds aka @cascadiaAnonymoushttps://www.blogger.com/profile/15643051324986386022noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-431942376876340102011-07-04T08:13:50.392-07:002011-07-04T08:13:50.392-07:00Dear Dave,
It would be amazing if you could inclu...Dear Dave, <br />It would be amazing if you could include our frustration about gag orders in some of your future speeches/posts. I do not think most folks are aware how many speakers have been silenced.<br /><br />Thank you so much.Regina Hollidayhttps://www.blogger.com/profile/14067714192642008661noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-39219556033140305052011-07-04T08:11:24.314-07:002011-07-04T08:11:24.314-07:00Dear Mary Ellen,
Thank you for explaining the box...Dear Mary Ellen, <br />Thank you for explaining the box fixation, I felt it was important and was trying to describe why. I am so honored to have you as a member of the Walking Gallery. I am so sorry for the tragic circumstance that brought us together, but I rejoice in knowing you. You and your family are in my prayers and I know we shall live to see change within the system.Regina Hollidayhttps://www.blogger.com/profile/14067714192642008661noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-26265495997393082232011-07-04T01:41:39.722-07:002011-07-04T01:41:39.722-07:00Dear Lord, Regina - and Mary Ellen. I'm sitti...Dear Lord, Regina - and Mary Ellen. I'm sitting here shattered, ripped to shreds by this story and how powerfully it's told here.<br /><br />Mary Ellen, thank you for not accepting that settlement. And I'm finding it hard not to think very obscene thoughts about the people who propose gag orders. What are they thinking - really?<br /><br />You who propose gag orders: what ARE you thinking? <br /><br />You who were involved in James's case: what did you do afterward, if anything, to reduce the odds of it happening again? Open discussion leads to such considerations; gag orders pretty much PREVENT them.<br /><br />Powerful. Thanks.e-Patient Davenoreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-84676175670700202572011-07-03T18:45:08.641-07:002011-07-03T18:45:08.641-07:00Thanks for sharing our story, Regina. I especially...Thanks for sharing our story, Regina. I especially appreciate the connection to the box. The initial title of the book was "Bringing home a Box" - since all I brought home was a small green silk covered box with his "effects". At 11 days - most of the "effects" are housed in a mother's heart. Sharing our story, I hope more moms, babies and their clinicians create more efective communication strategies during treatment. Everyone is happier (and safer) then.Mary Ellen Mannix,MRPEhttps://www.blogger.com/profile/10469559727721612148noreply@blogger.com