tag:blogger.com,1999:blog-6993740852730466692.post4247168724228905639..comments2024-03-27T21:04:55.416-07:00Comments on Regina Holliday's Medical Advocacy Blog: MeasuresRegina Hollidayhttp://www.blogger.com/profile/14067714192642008661noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6993740852730466692.post-18528302887192550212012-03-05T07:26:29.933-08:002012-03-05T07:26:29.933-08:00Amazing stuff. I heard about your work via Kathy ...Amazing stuff. I heard about your work via Kathy Apostolidis from Greece! I am a cancer patient advocate whose issues include QoL, reduction of toxicities, intergrative cancer treatments, lifestyle modifications and much more.<br /><br />I salute you with all my heart for using your creative power to make changes.Annie Appleseedhttps://www.blogger.com/profile/00861903147410838202noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-87112839808320770452012-03-01T17:04:16.165-08:002012-03-01T17:04:16.165-08:00Thank you Regina....I've been working on death...Thank you Regina....I've been working on death certificate reform and have asked that the NCHS include patient reps on all their committees. Dr. Frieden responded to a letter that I wrote (with many national patient safety orgs. signed on) and he committed to looking into patient representation on future death certificate reform committees. Unless we have accurate DC's (via autopsies), our vital statistics are worthless. So much funding goes into leading causes of death, but in reality the leading causes of death don't even make the list (!).<br /> Keep up the great work. Art like music, is spoken the same in every language.Lori Nerbonnenoreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-71704640543561286602012-03-01T11:08:58.482-08:002012-03-01T11:08:58.482-08:00Brilliant. Can we measure tipping points as they a...Brilliant. Can we measure tipping points as they are happening? <br /><br />"Be not afraid of greatness: some are born great, some achieve greatness, and some have greatness thrust upon them."<br /><br />thank you for speaking, for all of us.Sue Woodshttp://www.sharedhealthdata.com/noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-21697617795885286852012-03-01T02:38:15.560-08:002012-03-01T02:38:15.560-08:00Regina,
Ahhh...I didn't know the part about M...Regina,<br /><br />Ahhh...I didn't know the part about Matt Quinn, who has brought the patient perspective into so many environments through his curiosity and championship. The voice of the patient does have a lot of friends in the world of the horseshoe roundtable.<br /><br />Here's hoping that the narrative exploration turns into ongoing patient representation. Our job is always to bring the patient perspective forward,<br /><br />TedTed Eytanhttp://www.tedeytan.comnoreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-21531253963794721812012-02-29T17:09:23.528-08:002012-02-29T17:09:23.528-08:00Joleen, thank you that is high praise as I know yo...Joleen, thank you that is high praise as I know your standards are very high. I was even able to mention you and Hugo at one point in a side conversation about implantable devices.<br /><br />Kait it is such an honor to represent you. And Christine was truly amazing she threw her set to the side and spoke from her center.Regina Hollidayhttps://www.blogger.com/profile/14067714192642008661noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-69645598203364781662012-02-29T16:53:19.263-08:002012-02-29T16:53:19.263-08:00Regina,thanks for representing me there. I love yo...Regina,thanks for representing me there. I love your narratives and am grateful your voice was there- and in so many other places others haven't been. I am also very pleased to hear that Christine Bechtel spoke from a place of patient rather than patient group advocate. We all have powerful stories, if only we can remove our "professional hats" and really speak from a place of "patient."Kait B. Roehttps://www.blogger.com/profile/10927058540777075829noreply@blogger.comtag:blogger.com,1999:blog-6993740852730466692.post-47915880952067673472012-02-29T16:25:25.543-08:002012-02-29T16:25:25.543-08:00Regina Holliday -you do represent the patients! T...Regina Holliday -you do represent the patients! There are very few people I would honor with that title and endorsement. Bless you and your family for the efforts you have made on behalf of people you don't even know.Joleen Chambershttp://fida-advocate.blogspot.com/noreply@blogger.com