#Cinderblocks5: The Agenda

Cinderblocks5: The Walking Gallery Gathers

Thank you to our Diamond Cinderblock Level Sponsor:

May 16, 2018- Community Dinner

(This not an official part of Cinderblocks event but fun to attend.) The Appalachian Wagon Train will have a community dinner at the Grantsville Stock Yard 1060 Springs Rd, Grantsville, MD 21536 from 4-7 p.m. the cost is $5 per person. All are invited to eat hot dogs grilled over an open fire and see the Conestoga wagons with horses, as they get ready to head west Thursday morning.

Thank you to our Silver Cinderblock level sponsor:

Cinderblocks4: Conference Day 1

On Thursday, May 17 we will meet at 9:00 am at Penn Alps Restaurant and Meeting Center in the Alpine Room. Coffee is provided.

9:00 Opening remarks are by Regina Holliday, conference planner and founder of the Walking Gallery of Healthcare.

9:05 -9:55 Amy Edgar APRN, CRNP, FNP-C, Allentown, PA

Caronne Taylor Bloom,  Allentown, PA  

Children’s Integrated Center for Success (CICS) is a multidisciplinary treatment center in the Lehigh Valley committed to creating a path for success for children and their families. We serve the needs of children and adolescents living with Autism Spectrum Disorders, ADHD, Anxiety, and Mood Disorders.  They will present on how data helps inform strength-based narratives for our families and their children.

10:00-10:45 Ruth Chisholm, Oakland, MD RDN, LDN

Ruth Chisholm is a Registered Dietitian Nutritionist with Garrett Regional Medical Center. Ruth provides nutrition counseling for chronic disease management and prevention. She strives to help individuals establish habits that can be maintained for a lifetime.  Ms. Chisholm and Miranda Kessel, also of Garrett Regional Medical Center, will give a brief overview of the nutrition and diabetes services that GRMC offers (diabetes prevention program, outpatient nutrition counseling, outpatient diabetes clinic.) 

11-11:45- Heather Hanline, Oakland, MD

Executive Director of the Dove Center will present on the correlation between health disparity and trauma/sexual violence. Ms. Hanline holds a Master’s degree in Counseling Psychology and is a Licensed Clinical Therapist.  She has over 25 years of experience in the human services field, working with trauma victims in a variety of settings.  For the past 20 years, she has followed her passion to end domestic violence and sexual assault with the Dove Center, where she began as a counselor and has spent the past 18 years as the Executive Director.  She is a past recipient of the Governor’s Victim Assistance Award, for doubling the number of individuals served by the Dove Center in her first year of leadership.  She also spearheaded the building of the Dove Center’s combined counseling and shelter offices, which now stands as a permanent symbol of safety and healing.  She has written guest blogs for several statewide organizations, and has originated many innovative programs within the Dove Center’s programming.

Lunch is at noon.  

12:30-1:00 Sandeep Pulim, Chief Innovation Officer, Medici, Washington, DC

Medici is a next-generation HIPAA-compliant messaging app that enables medical providers and their patients to communicate virtually via text or video. Medici enables patient communication with their existing medical providers, creating an efficient channel for patients and their doctors that allows for more customized and timely medical care through a single app. Medici is an app that is revolutionizing the doctor-patient relationship and it is now available in all 50 states.

Prior to joining the Medici team, Sandeep worked to enable cognitive technology at the point of care for HCPs and patients, to positively impact clinical learning and quality measures for health care organizations and payers. Previously as co-founder of Health Recovery Solutions, he helped empower patients to better manage their health and improve quality of life using evidence-based interventions.

 1:00 to 1:30 Mary Anne Sterling, CEA, Ashburn, Virginia Disrupting the Caregiver Experience 

MaryAnne was a caregiver and healthcare advocate for her parents for 20+ years. She is a speaker, writer, and educator on the challenges of family caregiving and the brutal impact of dementia, a mission that began as she and her husband struggled with 3-out-of-4 parents diagnosed with the disease. She works tirelessly to advocate for other families and you will often find her on Capitol Hill or speaking at healthcare events around the country. MaryAnne is EVP of Caregiver Experience at tech startup Livpact, Co-founder of teamiCARE.org, and CEO of Sterling Health IT Consulting.

1:45-2:00 Robb Fulks, Reading, PA will be telling his Patient Story

2:00-2:25 Ashley Elliott, Grantsville, MD

 “Opioid Epidemic in the Community: What is REALLY happening? What can WE do to change it?”

2:30-3:00 Janice Lynch Schuster, Riva, MD

“Prove It: How Poor Pain Management and the Opioid Can Upend A Life”? Janice Lynch Schuster is a poet, writer, artist and curious person. Her career writing about public health issues for federal contractors did not prepare her to live with them. 

As a journalist she has frequently contributed to The Washington Post, including the Health and local opinions sections. She is a coauthor of an award-winning book on end-of-life care. After minor oral surgery in March 2013, she developed a chronic neuropathic condition called burning mouth syndrome, followed by a host of autoimmune disorders.

Since then she has joined the nation of pain patients, just in time to find herself in the cross hairs of the current battle about whether or not to treat people with chronic pain with opioids. In the course of these public skirmishes, Lynch Schuster has written about her struggle to find appropriate treatment, and what it's like to be over treated, undertreated, and mistreated, sometimes on the same day. Her website is www.janicelynchschuster.com

3:00 -3:30 Joshua Rubin, JD, MBA, MPH, MPP, "Democratizing Health Together: The Moral Imperative of Our Time"

Mr. Rubin serves as Program Officer for Learning Health System Initiatives at the University of Michigan Medical School’s first-of-its-kind Department of Learning Health Sciences. He also serves as Executive Director and Vice President of the Board of Directors of the Joseph H. Kanter Family Foundation. Previously, Rubin served as a Senior Policy Fellow at eHealth Initiative (eHI) and as a Senior Consultant at IBM Global Business Services, working at the intersection of the health information technology, health policy, consumer engagement, and public health arenas in both roles.

Rubin has conducted research related to and played instrumental leadership roles in developing the concepts for and convening cross-disciplinary meetings that have galvanized multi-stakeholder communities of interest to advance important collaborative efforts to innovatively address critical societal challenges at national and global scales — inside and outside of healthcare. Examples include: the 2010 International Working Meeting on Electronic Medical Records and Outcomes Research, the National eHealth Collaborative (NeHC) Consumer Consortium on eHealth, the 2012 Learning Health System Summit, the 2013 National Campus Sexual Assault Summit convened by Promoting Awareness, Victim Empowerment (PAVE), and several National Science Foundation (NSF) funded inter-disciplinary workshops aimed at coalescing a scientific community of interest to advance the research agenda to underpin a high-functioning Learning Health System.

Rubin serves as an active founding member of the Interim Steering Committee of the Learning Health Community, an international multi-stakeholder grassroots movement dedicated to realizing the Learning Health System vision on a national (and ultimately global) scale. He also serves as its President and CEO on a pro bono basis. Rubin has presented on the Learning Health System vision and the need for multi-stakeholder, trans-disciplinary collaboration to realize it at conferences and meetings nationwide. He serves as Director of Policy for the Opioid Research Institute of the United States, a project funded by the Joseph H. Kanter Family Foundation. Rubin also serves pro bono in board or advisory capacities to PAVE (as President of the Board of Directors), to the Vlasic & Roth LLC Lab (as Executive Director), to the Learning Health Systems open access scientific journal, to the Trans-disciplinary Collaborative Center for Health Disparities Research: Health Information Technology Policy Project (TCC HIT) convened by Morehouse School of Medicine, to the Global Alliance for Genomics & Health (GA4GH) eHealth Task Team, to Philanthropy for Active Civic Engagement (PACE), and to the Healthcare Information and Management Systems Society (HIMSS).

Rubin has published and presented extensively and has served as Guest Editor of a special theme issue of the Learning Health Systems open access scientific journal about patient empowerment and the Learning Health System. He has been recognized as a Disruptive Women in Health Care “Man of the Month” and an inaugural National Association for Trusted Exchange (NATE) “Champion of Consumer Access”. A valedictorian, a life member of MENSA, and a graduate of Georgetown University’s College of Arts and Sciences (Summa Cum Laude, Phi Beta Kappa), Rubin holds a Juris Doctor (JD) law degree from Georgetown University Law Center (Cum Laude) and is a member of the Virginia State Bar and the District of Columbia Bar. He also holds a Master of Business Administration (MBA) and a Master of Public Policy (MPP) from Georgetown University, and a Master of Public Health (MPH) from the Johns Hopkins University Bloomberg School of Public Health, all with healthcare concentrations (and all with high honors/distinction).

3:30-4:00 Ileana Balcu, Woodbridge, NJ  “Primary Care for the Digital Age - A Community Experiment" 

Ileana Balcu is a Healthcare IT Project Manager for Dulcian, Inc. She manages The Chronic Care Management software used by hundreds of primary care practices and a budgeting and reporting system for the Office of Alcohol and Substance Abuse in the state of NY. Since 2003 when she had preeclampsia, Ileana became an empowered patient and a patient advocate. She was a volunteer IT Director for The Preeclampsia Foundation and Board Member and Communications Lead for the Society for Participatory Medicine. Ileana teaches the New Media and Health Communications course at The College of New Jersey. As a caregiver, she helped Paul Dorsey manage his cancer journey.  

4:00-4:30 Steve Daviss Senior Medical Advisor, Office of the CMO at Substance Abuse & Mental Health Services Administration (OPPI/SAMHSA/HHS)

4:30-5:00 Mark Johnson, MHA, RN‑BC, CPHIMS, FHIMSS, Blue Ridge, South Carolina “The Danger of Sepsis. “

Mark Johnson is a Senior Director at Iatric Systems. Mark joined Iatric Systems in 2007 and has served in various software solutions roles during his time with Iatric Systems. Mark’s nursing background includes psychiatric, cardiac and oncology practice. Mark is currently serving on the board of directors for the American Nursing Informatics Association and has previously served on HIMSS national committees and taskforces, including the Connected Patient committee and the PGHD taskforce.  

The daily educational conference session ends at 5:00pm.  Feel free to explore the grounds, rest and grab a bite to eat before the evening program begins.

7:00pm to 10:00pm Dedication to those we have lost in the past year at Salt and Pepper Studios

On Thursday, May 18^th at 7:00pm a dedication will be held at Salt and Pepper Studios: the home of the Walking Gallery, 189 Main Street in Grantsville. Conference attendees and members of the public are invited.  Refreshments will be provided and the dedication is free and open to the public.  From 7:30-8:30 Paul Zimmerman and Greg Hays will play guitar. At  8:00pm perform a dedication in honor Aaron Richardson, friend of the Walking Gallery, who attended the first gathering in 2011.  He was an amazing person who loved Doctor Who, computer technology, and his friends and family. 

We will also honor Lori Marx-Rubiner who died August 2, 2017.  She was a member of the Walking Gallery and an amazing breast cancer advocate.

Conference Day 2,

On Friday, May 20th another conference day begins!  At 9:00 am we meet at Penn Alps Restaurant and Meeting Center for breakfast and our general session. Coffee is provided.  

9:00am Opening remarks Regina Holliday

9:05-9:35 Paul Edwards, Grantsville, MD County Commissioner for Garrett County will present on the state of the county and the history of Grantsville.

9:45-10:00 Danny van Leeuwen, Boston, MA Speaks on the many things we do to improve healthcare: playing, speaking, blogging, clinical care…

An action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. A patient and caregiver activist writing, speaking, and advising on learning what works for people in their health journey: informed decision-making, patient-centered research, communication at transitions of care and technology supporting solutions created by and for people. Serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. Reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Active in the Society for Participatory Medicine as editor of their newsletter. Member of the Health Information Systems Society (HIMSS) and the Academy of Communication in Healthcare (ACH). Technical expert for the CMS-funded Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures. Blogs weekly (www.health-hats.com) and recently published in BMJ and JoPM. Plays baritone saxophone.

10:05-10:40 Lisa Skipper, Mountain Laurel Medical Center, Oakland, MD

Certified Navigator with MD Health Connection and Project Coordinator with RAEN (Rural Action Enrollment Network) at Mountain Laurel Medical Center in Oakland, MD since 2013.

“I love what I do in assisting, not only our patients, but others from the community in need of health insurance. We go beyond just helping them with enrollment; we offer benefits counseling and education, as well as answering questions in an ever changing insurance world for those in Medicaid and health plans with monthly premiums.”

Married with 2 sons, who are both Volunteer Firefighters with Bittinger VFD.  Lives on the family farm near Bittinger and is a member of St. John’s Lutheran Church at Red House where she currently serves as Council President and on other committees.

10:45-11:00 Colin Hung,  #HCLDR, Toronto, Canada

Results-driven marketing professional with extensive experience building and leading high-performance teams for large and start-up companies. Consistently over-achieved growth and revenue targets through innovative marketing strategies. Extremely resourceful leader that knows how to combine social, digital and traditional marketing into cohesive strategies that outperform competitors and open new markets. Proven change agent who builds bridges across teams, companies and countries through openness as well as mutual respect.  Passionate about patients, #HealthIT and healthcare. Specialties: branding, digital marketing, demand generation, event marketing, content marketing, ABM, social selling, client retention, product innovation, alliances, partnerships, international expansion

11:05-11:30 Mike Mittleman, Philadelphia, PA Speaks about Living Donation

Michael Mittelman is currently the Co-Founder and VP of Patient Advocacy and Strategic Partnerships of the American Living Organ Donor Fund, a patient rights group focused on helping living organ donors in their quest to become a donor. Michael has also worked as a payer when he served as a Product Development and Capability Manager at Independence Blue Cross. He is the former Patient Editor at The BMJ, and he currently sits on the International Patient Advisory Panel. Prior to that he was the CEO and Co-Founder of PHmHealth, a digital health company focused on post-acute care and compliance. His experience as a patient spans over 3 decades. He is a 3-time kidney transplant recipient with other chronic conditions, including a rare disease. Michael was invited to testify/advocate before the FDA and serves as PCORI (Patient-Centered Outcomes Research Institute) patient representative. Additionally, he serves on the steering committee of a PCORI-Funded initiative. He has also overseen the mobile app development taskforce and the data governance taskforce for the same PCORI-funded initiative, the NephCure Kidney Network. Michael is a tireless, independent patient advocate and a healthcare strategist. He strongly believes that patients should play integral roles in healthcare companies and government agencies. Michael holds an MBA in Healthcare Management from the Fox School of Business at Temple University. He also has a BA in Biological Basis of Behavior from the University of Pennsylvania. He is a published author with recent pieces in the American Journal of Transplantation and the BMJ.

11:30-12:00 Jade Kenney and Kendra Brill speak about Rainbow Bridge Home in La Vale, MD

Kendra Brill is a certified facilitator trainer for transgender support groups. She brings her knowledge and experience as a lifelong transgender advocate and business woman to oversee LGBTQIA coaching groups internationally.

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As a business owner in the cosmetics industry, she is in a unique position to empower LGBTQIA Youth to embrace their identities and accentuate their gifts in Rainbow Bridge's life groups and support programs.

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“For the LGBTQIA community, everyday tasks can bring seemingly insurmountable challenges to overcome as we transition to our authentic selves. Sometimes, these challenges will threaten to overwhelm us, and at these times, we’ll feel the need to reach out to friends, peers and charities for support. It’s for this reason that I envisioned the Rainbow Bridge Home as a safe space and feel the desire and the passion to share this venture with the Cumberland, Maryland community.  To share the experience and trust in their inner strength.  I passionately believe across America, the time has come to create a movement. A movement that advocates for equality of rights and respect for diversity at a local and national level. A movement which has the compassion and network to support our community on a personal level where it is so often needed.  It’s for this reason that you should consider joining, too.  As a LGBTQIA community, we’re already knocking on and breaking glass ceilings. We are the police, the doctors and nurses, the soldiers and politicians that society turns to in times of needs.  Our time is coming! Join us on our path.”

Jade Catherine Kenney is not only a certified life coach and a Survivor, she is the mother of 2 beautiful children, Hayden 13, and Ellie Grace, 3.   She has been in recovery since 2014 and has fought diligently to restore her life, obtain custody of her children, and give them a home and a place where they can finally plant their roots and grow into a life they once never could have imagined would be possible.

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As a life coach, Jade encourages and counsels her clients on a range of professional and personal issues.  Jade has a distinct ability to connect with her client's through advice, consulting, counseling, mentoring and therapy.  Her coaching technique takes on specific professional projects, personal goals and transitions by analyzing the current situation, identifying existing and potential challenges and obstacles and devising a plan of action designed to achieve specific outcomes.

The life coach/client relationship is a creative partnership which seeks to:

·       Identify, clarify and create a vision for what the client wants

·       Use coach’s expertise to modify goals as needed

·       Encourage client’s self-discovery

·       Nurture and evoke strategies and a plan of action based on what fits best with the client’s goals, personality and vision

·       Foster client accountability to increase productivity

These aspects of the process all work together to allow the client to maximize his or her potential, and research shows that coaching and training is a far more potent combination than training alone. In fact, training alone can increase productivity by 22.4%, but when combined with weekly life coaching, productivity is boosted by 88%.

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Jade's association with the Rainbow Bridge Home has quite a twist. Before this house became a healing home it was once a house of horror for her. This is something she shares personally in her sexual abuse recovery groups, which are open to the public, and to survivors and victims of sexual abuse, rape, or molestation.

Jade has such a unique story, with such incredible experience on so many different levels.  From parenting skills to trauma, she has journeyed upon so many different avenues, which has molded Jade into a true warrior who has fought relentlessly to overcome adversity, in the face of oppression. Jade's stories will leave you breathless yet coming back for more. Not only is she is a gift to our team, she is an asset to everyone who comes into her presence, especially with those who seek out her services, and what she can offer which comes selflessly. Jade, wants nothing more than to help those who are struggling and suffering so that they never have to go through hell feeling lost, and broken, all alone.  Jade and the rest of the staff at the Rainbow Bridge Home are here to keep our torches lit, in order to help other's find their way back into the light! 

12:00-12:30 Lunch buffet

12:30-1:00 Mark Scrimshire, Baltimore, MD from Center for Medicaid and Medicare Services in Baltimore will present a discussion on patient empowerment and Blue Button.

Entrepreneur-In-Residence at NewWave Telecoms and Technologies (newwave.io), currently on assignment as Medicare Blue Button 2.0 Innovator at the Center for Medicare and Medicaid Services (CMS) where I have designed and implemented the new API to enable 53 million Medicare Beneficiaries share their claims information with the applications, services and research programs they choose to trust. This HL7 FHIR-based API is being held up as a model for adoption across the HealthCare industry. Co-Founder of Medyear, a Salesforce accelerator company. Previous Health sector experience has included designing a platform for chronic diseases during the early days of the Internet, working with CareFirst on the implementation of the NPI, and establishing the first cloud-based ICD10 computer-assisted coding platform for 3M as part of the transition of its entire product line to a cloud-based architecture.As the founder and Chief Instigator of HealthCa.mp, an international series of “un-conferences” breaking down silos and bringing people together to reinvent health care I have consistently advocated for patient engagement and empowerment. This passion for patient empowerment coupled with a diverse expertise across multiple Web and Health technologies provides me with a unique perspective in reengineering healthcare, from Strategy to development and deployment, with the patient/consumer at the centre.

1:00-1:30 Karla Robeson, Optimal Health Care

Karla J. Robeson, BSc, Director of Marketing and Business Development for Optimal Health Care, Inc.

Graduated from Univ. of Maryland in College Park, emphasis of study in Family Management, Community Development and Gerontology. 

Upon graduating U of MD, I spent several years working in the home health field as an assistant director and trainer.  After taking time out to spend raising my children, I went back to work with Frederick County Schools, providing support to the Special Education programs, including instruction in the pilot program for Dyslexia Services. I  then went to work for a non-profit agency (The Arc of Frederick County) under contract with the Developmental Disabilities Administration of Maryland, serving people with developmental disabilities throughout Frederick county. Within that agency, I worked with families and individuals meet their personal goals through community resources, in home supports, equipment and supplies, as well as educational and medical advocacy. In addition, I helped develop programs for Transitioning Youth and Futures and Estate planning. I came to work for Optimal Health Care, Inc several years ago, and have spent the last year working on developing our business opportunities as we have grown to serve the entire state of Maryland in both Health care and DDA Coordination. 

1:30-200 Kistein Monkhouse on patient centered care

Seven years of direct care experience and passionate about changing the narrative of the modern day healthcare experience. So I founded Patient Orator with the intent of positively impacting the way we conceptualize, practice, and experience healthcare. In short, I’m excited to be leading the #PatientOrator movement and I’m looking forward to the road ahead. I’ll be featuring stories on Patient Advocacy, Patient Experience, Civic Engagement:Thoughts on US Healthcare System and Advancing Health Equity in the United States. Watch me have these discussions with key stakeholders all across the U.S via the Patient Orator Youtube channel & Website (www.patientorator.com).

2:00-3pm Julia Musselwhite, DNR  Healthy Parks, Healthy People: Finding Wellness in Your Local Outdoors

Ranger Julia Musselwhite has worked for the Maryland Park Service since 2006, beginning as an AmeriCorps volunteer with the Maryland Conservation Corps and eventually earning full time ranger status.  Her career began near her hometown in Harford County, but she has been a Garrett County resident since 2011 and is the current Assistant Park Manager at Rocky Gap State Park in Allegany County.  Whether for work, or in her personal life, Julia enjoys time outdoors and helping others discover new opportunities and adventures. Attendees will go on a walking tour with Ranger Julia.

The White Art House by The Cornucopia Cafe
(3:00-4:00 Facilitated Art Project sponsored by the Lilly Clinical Innovation team)

The Walking Gallery Gathers 6:00-10:00pm 

At 6:00 pm we will gather at the Casselman River Bridge for a group shot of The Walking Gallery and the conference attendees.  We will then walk across the historic bridge to the Little Crossings field by Spruce Artisan Village.   
There we will have our evening event under the big tent; this portion of the conference event is open to the public and does not require tickets. 

7:00-8:30Marsha Goodman-Wood, Washington, DC, singer, songwriter and neuroscientist, will present “Music as Medicine.”

Marsha Goodman-Wood is a DC-based singer/songwriter, music and drama teacher, mom, and former cognitive neuroscientist (BA in Psychology, Columbia University, 1994; MA in Psychology/Cognitive Neuroscience, University of Missouri, 2000). Marsha’s debut solo album Gravity Vacation contains fun original songs about science & how the world works. Marsha performs regularly either solo or with her band, The Positrons at venues and series in the DC/MD/VA area (and occasionally further afield) that offer family entertainment, as well as museums (including the Smithsonian National Air & Space Museum), libraries, schools, fairs and festivals. Website: www.marshagoodmanwood.com

Marsha will dedicate a few songs to the members of the Walking Gallery no longer with us.

8:30-9:00 Grab a stick and Make some smores around the bonfire.

9:00-9:45:  Terah Crawford, of  The Terah Crawford Band based in Deep Creek Lake Maryland. Combining their love for mountain music with classic rock, outlaw country and just a touch a folk, they’ve created their own style of playing. Check them out all over Garrett County, MD and surrounding areas to enjoy their homegrown Appalachian Folk Rock ways

                                                         
Thank you to our Silver Level Cinderblocks Sponsor: CareSet Systems

                         

Conference Day 3

May 19, 9:00 am meet at Salt and Pepper Studios, 189 Main Street. This day we will break into small groups to work on mentoring, individual coaching sessions, poetry and painting Walking Gallery jackets until noon.   The Cornucopia Café and Little Crossings will also host juried artists and local food venders for an Artisan and Epicurean Faire on this day.  

Thanks for taking part in our 5^th Cinderblocks