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Thursday, July 11, 2019

#Cinderblocks6 Agenda

(I will keep updating this post with any new information )

Cinderblocks6: Conference Day 1

We thank our Sponsor: Learning Health Community 

On Thursday, May 17 we will meet at 9:00 am the WoodmenLife Hall at 168 Miller Street, Grantsville (near the tennis courts in the town park.)

Coffee and snacks are provided.

9:00 Opening remarks are by Regina Holliday, conference planner and founder of the Walking Gallery of Healthcare.

9:15-10:00 Danny van Leeuwen, Boston, MA Speaks on the many things we do to improve healthcare: playing, speaking, blogging, clinical care.

An action catalyst empowering people traveling together toward best health, Danny wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. A patient and caregiver activist writing, speaking, and advising on learning what works for people in their health journey: informed decision-making, patient-centered research, communication at transitions of care and technology supporting solutions created by and for people. Serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. Reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Blogs weekly ( and recently published in BMJ and JoPM. Plays baritone saxophone

10-10:20- Piper's Dankworth Sutton “Who said heart failure?”
When someone says "heart failure" and your name in the same sentence, it gets your attention. When Piper Dankworth Sutton found herself in that very situation, it started a journey that made doctor to doctor and doctor to patient communication critical to her survival -what was and wasn’t said, and how it was said, impacted the complex treatment decisions that followed.  Piper will share the story of her heart transplant experience, including how the tables are turning on how communication drives both treatment and recovery outcomes, with a greater emphasis now on patient-centered care, and how doctors can better communicate with patients in heart transplantation, and across the healthcare system.

Piper's bio:
Heart transplant recipient Piper Dankworth Sutton, now retired, is a visiting volunteer for Mended Hearts, a member of the Family Patient Advisory Council for Inova Heart and Vascular Institute as well as the Heart Failure Collaboratory. In addition, she participates in organizational and pharmaceutical heart failure patient forums. Prior to retirement, she was a fundraising executive for non-profit healthcare organizations including Inova Health System Foundation, National Osteoporosis Foundation, and JDRF.

Casey 10:30-11:00 Title: 
Facebook: Dangerous to human health 

Imagine finding out that a dangerous creep has been living in your house - in your attic, in your closets, in your bathroom, in your bedroom, in your kitchen, in every room of your house - for years. Imagine discovering that you invited that creep in without realizing you'd done so. 
If you're still using Facebook, you're living with that dangerous creep.
Casey Quinlan is part of a group called the Light Collective, working to build safe harbor, off of Facebook, for community building that doesn't include having to let dangerous creeps live in your house. 
She'll share how the security holes in Facebook let dangerous creeps put patient communities at risk around the world, and what the Light Collective is doing to shift the power paradigm in digital community building.

Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her standup comedy set. When she got a cancer diagnosis five days before Christmas, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most of a Daunting Gift” about managing medical care, and the importance of health literate self-advocacy. She writes, she speaks, she facilitates the Festivus Airing of Grievances in healthcare. Her favorite people to work with are those who want to fix the system, not serve the status quo.
11:00-11:45 Sound , Meditation, and Healing 

Shannon and Selomon will present how sound and meditation can alter and help with the healing process. After a short discussion on the methods and frequencies used for healing they will perform a short sound meditation experience prior to lunch to get everyone relaxed and prepared for the rest of the event. 

Shannon is a Transformational Coach that is certified in and works with a variety of holistic, artistic, and musical modalities to help others with their healing process and finding their true purpose.  Find more about her and her offerings at

Selomon is a certified Meditation Teacher and has been teaching groups and individuals alternative healing techniques for almost 10 years across the country. Learn more about him at
Lunch is at noon

12:30-1:00 Ileana Balcu, Woodbridge, Ileana Balcu, Woodbridge, NJ  “Digital Health for Young Adults" 
Description: Our children are growing up. As decades-long observers of the healthcare system in US and in the world we rejoice about the possibilities and we worry about the fallout. A young adult growing up in the digital world will most certainly find a way to get health information and the healthcare they need. Can we help them find the good stuff and weed out the bad stuff? Can we teach them find the best most affordable care they need. Can we enroll them into making the healthcare system better?
Together, let's investigate what we need to guide our youth to living healthy and finding the right care in sickness. 

Ileana Balcu is a Healthcare IT Project Manager for Dulcian, Inc. She manages The Chronic Care Management software used by hundreds of primary care practices and a budgeting and reporting system for the Office of Alcohol and Substance Abuse in the state of NY. Since 2003 when she had preeclampsia, Ileana became an empowered patient and a patient advocate. She was a volunteer IT Director for The Preeclampsia Foundation and Board Member and Communications Lead for the Society for Participatory Medicine. Ileana teaches the New Media and Health Communications course at The College of New Jersey. As a caregiver, she helped Paul Dorsey manage his cancer journey.  

1:00 to 1:30 Mike Douglas, Being Patient and Storm-trooper: POTS and the 501st Legion
1:30-2:00 Mark Scrimshire will speak about BlueButton and the impact of the CMS interoperability rule

2:00-2:30 Donna Jo Brenneman, Executive Director of Garrett County Hospice 
2:30-3:00 Thomas Vose, Director of the Ruth Enlow Library of Garrett County is speaking about the library as social infrastructure.

3:00 -5:00 Playing in the Park!
The Joint Training Facility, a mobile sports and family entertainment business will be running games in the Grantsville Town park. The owners of JTF are two military veterans - Ronda Johnson with 12 years of Army service and Michael Mc Closkey with 14 years in the Marine Core. The games we will play include- Snookball, Connect 4, Checkers, and Box Hockey.

Thank you to our reception sponsor: CareSet Systems

7:00pm to 10:00pm Cinder-Block Party
On Thursday, July 18th at 7:00pm a party will be held at Salt and Pepper Studios: the home of the Walking Gallery, 189 Main Street in Grantsville. Conference attendees of Cinderblocks6 and members of the public are invited.  Refreshments will be provided and the party is free and open to the public.  

Conference Day 2,
On Friday, July 19 another conference day begins!  

We thank our sponsor: Abridge

At 9:00 am we meet at Woodmen Building 168 Miller St., Grantsville. Coffee & snacks are provided.  
9:00am Opening remarks Regina Holliday
9:30-10:00 Paul Edwards, Grantsville, MD County Commissioner for Garrett County will present on the state of the county and the history of Grantsville.
10:00-10:40 John Johnson, Adult & Teen Challenge, Tri State. John will update us on plans for an addiction treatment center in Grantsville.
10:45-11:00 Ashley Elliott, Presenting the patient view
11:00-11:30 Steve Bortz, Garrett County Habitat for Humanity, Steve will present on the expansion of the program into Northern Garrett.
11:45-12:30 Mark Boucot, President and CEO of Garrett Regional Medical Center, an affiliate of WVU, will present on the hospital’s expansion and its continued embrace of value based care and the hospital’s plan to embrace cancer care in Western MD.  

12:30-1:00pm Lunch

1:00-1:30 Shivdev Rao, founder of Abridge.AI. In short, he's passionate about humans and humanity and is working on a solution to help patients record health care conversations.

1:30-2:00 Dave DeBronkart, Patient Speaker

2:00-2:45 pm Virginia Lorenzi, Manager - Imagine Healthcare Interoperability

Virginia has been working with health IT for almost 3 decades.  She has spent most of her career specializing in healthcare interoperability with some software development and consulting experience and 25 years in the NewYork-Presbyterian hospital (NYP) IT department focused on solving real-world interoperability problems using a variety of healthcare interoperability standards.  For the past decade she has served as NYP’s regulated Health IT subject matter expert for and has been instrumental in the rollout of the EHR Meaningful Use and Promoting Interoperability across the enterprise. 

She is a champion of standards-based interoperability and is especially proud of her 25 years of active service to Health Level Seven as a standards developer and educator and 4 years supporting Integrating the Healthcare Enterprise. She also represents NYP in the CARIN Alliance which focuses on interoperability from the consumer perspective.

In addition to her role at NYP, Virginia is a member of the faculty in the Department of Biomedical Informatics at Columbia University.  She runs the Certification of Professional Achievement in Health IT, a 12 credit blended learning intensive training program.  She also serves as the department’s standards educator and expert – most recently providing advisement to all research using HL7 FHIR. 

Finally, she is involved in numerous HIT community efforts through work with HIMSS, AMIA, and the NY Academy of Medicine. She has been asked to present at numerous conferences, to deliver testimony in Washington, and guest lectures on interoperability at several colleges.  

3-4 Alex Fair, Medstartr, New York, NY Will talk about pitch competitions and crowd funding.
4:00- 4:15 Caitlyn Allen: Patient Safety Journal
4:15-4:30 Robb Fulks, Patient Story
4:30 Regina Holliday closes the regular conference session and prepares attendees for an evening of music. 

We thank Energizing Health as our sponsor for our evening of music at The Chapel

The Walking Gallery Gathers 6:00-10:00pm 
At 6:00 pm we will gather at the Casselman River Bridge for a group shot of The Walking Gallery and the conference attendees.  We will then walk across the historic bridge lit with over 500 luminaries.  We will have our evening events in the Chapel; this portion of the conference event is open to the public and does not require tickets. 
6:00-7:00 pm George Skiles will play guitar 
7:00-7:45pm Local Musicians Sean and Debi Beachy will play jazz, voice and piano.
7:45-8:00pm Josh Rubin serves as Program Officer for Learning Health System Initiatives at the University of Michigan Medical School’s first-of-its-kind Department of Learning Health Sciences.  He will present a few words as a sponsor.
8:00-9pm Ross Martin, MD will sing several songs focused on healthcare.
9:00-10:00 pm The Durst Brothers will perform a mix of Blue Grass and Gospel

Conference Day 3
July 20, 9:00 am meet at Salt and Pepper Studios, 189 Main Street. This day we will break into small groups to work on mentoring, individual coaching sessions, poetry and painting Walking Gallery jackets until noon.

Sunday, November 4, 2018

The Walking Gallery Year 8

This is the eighth year of the Walking Gallery of Healthcare.  We now number 456 members walking around the world with patient story paintings on our backs.  We are attending medical conferences where often there isn’t a patient speaker on the dais or in the audience. We are providing a patient voice, and by doing so, are changing the conversation.

An artist or artists interviews medical professionals and lay individuals to form a patient centric narrative. The artist then creates representational imagery and paint that picture story upon the business jacket of the provider of the narrative account. The provider of the patient story aka “Walker” wears the jacket to medical conferences and events in order to disseminate the patient story to a large group of policy minded attendees and to represent the individual patient voice in venues where they are underrepresented. Further, both artist and walker will support the spread of the story and image via social media.

As of November 2018, 456 unique Walkers have joined the Gallery wearing 506 jackets.  The Gallery has representatives on six continents, but the majority of Walkers reside in the US. One artist creates the majority of the art, but new artists are frequently joining the movement.  The Gallery is promoted heavily on twitter, facebook and personal blogs.   Its widening appeal within the health conference community is creating a new space for patients at such events.

If you are interested in joining the Walking Gallery here is the info:

If you would like to help fund the movement: 

Here is a short film about the movement:

The names of the Artists of The Walking Gallery followed by the quantity of jackets they have painted:  
1. Regina Holliday, 432 jackets
2. Isaac Holliday, 2 jacket
3. Becca Price, 1 jacket
4. Miriam Cutelis, 1 jacket
5. Ess Lipczenko, 1 jacket
6. Ben Merrion, 1 jacket
7. Courtney Mazza, 8 jackets
8. Michele Banks, 1 jacket
9. Megan Mitchell,1 jacket
10. Robert J. Filley, 3 jackets
11. Anita Samarth, 1 jacket
12. Mary Welch Higgins, 2 jackets
13. Richard Sachs, 2 jackets
14. Jonah Daniel,  1 jacket
15. Fred Trotter, 1 jacket
16. Leela, 1 jacket
17. Gayle Schrier Smith, 1 jacket
18. Moira Simms, 1 jacket
19. Joan Holliday, 1 jacket
20. Adalyn, 1 jacket
21. Chris Chan, 1 jacket
22. Amy O'Hanlon, 1 jacket
23. Vera Rulon, 3 jackets
24. Jessica Nicula, 2 jackets
25. Nikai, 1 jacket
26. Deonm, 1 jacket
27. Daquane, 1 jacket
28. Olivia Dias, 1 jacket
29. Donnell Bonaparte, 1 jacket
30. Hazel F., 1 jacket
31. Rachel Fields, 1 jacket
32. Zoe Carr, 1 jacket
33. Thomas Richardson, 1 jacket
34. Tamela Mack, 1 jacket
35. Julia Anderson, 1 jacket
36. DJ Hamilton, 1 jacket
37. Jenn Toby, 1 jacket
38. Camala Walling, 1 jacket
39. Jordan Lanham, 1 jacket
40. Josh Miller, 1 jacket
41.  Te'j Matthews, 1 jacket
42.  Tony Zieger, 1 jacket
43.   Shannon Shine, 2 jackets
44.   Melody Smith. 4 jackets
45.  Kay Seurat, 1 jacket
46.  Danny McGinnest Jr., 5 jackets

47. Janice Lynn Schuster, 1 Jacket
48. Kathleen R. Drake, 1 jacket
49. Ileana Balcu, 1 jacket

For more information about joining the movement or to see all 500 plus jackets, please scroll to the bottom of this post.

The Walking Gallery members who had jackets painted in Year Eight: 
506. Danna Merritt "Helping Each Other."

505. "Bounce Back" a jacket for Genevieve Morris

504. "The Saving Tree" painted and worn by Casha Mills

503. "Woodbridge Health" worn and painted by Ileana Balcu

502. "Escape Artist" worn and painted by Kathleen R. Drake 

501. "Open Doors" Bracha Berlin

Read: to understand the origin of the Walking Gallery. to understand the sacred nature of this path

To view jackets of year three 252-328

To view jackets of year four 329-393

To view jackets of year five 394-430