The Paintings of The Medical Advocacy Mural Project: 2009-2025

I began my advocacy mission in 2009 inspired by my husband Fred Holliday II and our fight for patient data access while he was continuously hospitalized at five facilities in eleven weeks.  I started my advocacy by painting murals.  Thus began Medical Advocacy Mural Project.

Then I started to paint studio pieces on canvas.  At this point I have painted many canvases in my home studio.  It is a thoughtful process, but sometimes quite lonely.

In the fall of 2010, I began to live paint at conferences.  Live painting is such an amazing process.  I love the energy of the crowd and the speaker.  I love the frequent interruptions that add depth and story to the piece.  In the past eight years I have painted many canvases and facilitated pieces.  They vary greatly.  As I scroll through them, I can see my growth as an artist.  I thank every venue that has given me the space to paint and thereby allowed me to create hundreds of images while meeting so many amazing people.

(I also founded a movement called The Walking Gallery.  I have painted 450 jackets in that movement since 2011. You can learn more about that here. There are 52 artists painting and we have painted 520 jackets.)

2025 Paintings 

HHS Meeting June 3, 2025, Washington DC

331. "Meek"

2024 Paintings

Annual Meeting of the Association for Vascular Access, Aurora, Colorado September 28, 2024

          330. "Turning On the House Lights" 

Health Data Palooza, Washington DC September 17, 2024

329. "Floating On a Sea of Change" 

Health RosettaFest, Washington, DC, September 12, 2024

328. "Cloud Cover"

International Congress on Academic Medicine Vancouver, Canada, April 13-15, 2024

327. Painting Day 1 "Centrifuge"

326. Painting day 2 "the Way The Wind is Blowing

 

325. Painting day 3 "Woven"

2023 Paintings

324. "Can you lock up the cloud?" Painted at Datavant Summit: The Future of Health Data in Washington, DC, October 3, 2023

323. Painting Day 2 "The Golden Age of Medicine" painted at The Person Centered Care Forum in collaboration with Planetree and Hamad Medical Corportation, September 23, 2023, Doha, Qatar

322. Painting Day 1 "Mashallah" painted at The Person Centered Care Forum in collaboration with Planetree and Hamad Medical Corportation, September 22, 2023, Doha, Qatar

321. "Making Memories" for Larry

 

320. "Seven Tables" Painted at the Acela Patient Safety Meeting June 15, 2023 Philadelphia, PA

319. Facilitated art at Nursing Week at Blessing Hospital May 3-4, 2023 Quincy, Illinois

2022 Paintings 

318. "Reel Life" for Bella

317. "Playing with API" for Will

2021 Paintings: 

316: "The Partnership Experience Symposium"

Sept 22, 2021 at the Patient Experience Symposium, Boston, MA

315: "Communication" 

September 21, 2021 at the Patient Experience Symposium, Boston, MA 

314. "Voyage of the Navigators" inspired by Andrea Messina

2020 Painting. In 2020, I shattered my painting arm in May.  It required surgery and 5 month of physical therapy, so I only completed one painting. 

313. "A Mile in Your Shoes" for Hackensack Meridian Health completed in my home studio due to Covid travel restrictions. 

2019 Paintings

312.) "Open Access" for Journal of Medical Internet Research 

311.) "Double Dutch"

October 23, 2019 Great Lakes Health Connect, Lansing, Michigan

310.) "Teamwork"
October 22, 2019 Remedi Senior Care, Hanover, Maryland

309.) "Reflections on the Upside Down"

July 24, 2019 Onsite painting at the Telluride Experience, Ellicott City, MD

308.) "Call to Action"

July 22, 2019 Onsite painting at TCU (Texas Christian School) Medical School,  Fort Worth, Texas

307.) "Abide with Me."
June 14-15, 2019 Painting Day Two, Onsite Artist at Allegheny Synod Assembly,  Altoona, PA

306.) "Living in The Messy Church"

June 14-15, 2019 Painting Day One, Onsite Artist at Allegheny Synod Assembly,  Altoona, PA

305.) "Caring" 

June 1, 2019 Onsite Painting for International Association of Human Caring, Greenville, South Carolina

304. "Beating the Drum"

 May 3-4, 2019 Painting Day 2 for the Northern Constellations Conference, Sudbury, Ontario

303.)"Wild Ginger"

May 3-4, 2019 Painting Day one for the Northern Constellations Conference, Sudbury, Ontario

302.) "Blind Spot"
April 26, 2019, Onsite painting for Indiana Association of Nurse Executives Conference, Fort Wayne, Indiana

301.) Painting Day 2, "Trial and Error"
March 9, 2019 Onsite painting Energizing Health at SXSW, Austin, Texas

300.) Painting Day 1, "Welcome to the Health House"
March 8, 2019 Onsite painting Energizing Health at SXSW, Austin, Texas

299.) "Master Carver"
January 17, 2019
Onsite Painting 12th Annual Patient and Family Centered Care Conference, Augusta University, Augusta, Georgia

2018 Paintings

298.) "Where it all began."
A painting for Genetic Alliance December 2018

297.) "Still"

September 21, 2018

Keynote Speaker for Community Health Network, Indianapolis, Indiana

September 6, 2018

Keynote Speaker Kansas Hospital Association, Overland Park Kansas June 5, 2018
296.) "Bee the Change"

295.) Keynote Speaker, Indiana Hospital Association, Fishers, Indiana
"A State of Mind"

294.) May 8, 2018

Keynote Speaker at National Council for Prescription Drug Program, Scottsdale, Arizona
Day 1 painting: UPI(Unique Patient Identifier)

293.) Day 2 Painting: "The Watermelon and the Grape."

April 18, 2018
On site painter for Oneview Health, Chicago, Illinois
292.) "Creating Balance"

March 7-8, 2018

Painting onsite for Basehealth and Oneview Healthcare at HIMSS18, Las Vegas, Nevada

Oneview: 291.)

Basehealth: 290.)"House of Cards" 

February 15, 2018

Keynote Speaker ETSU Mary B. Martin School of the Arts, Johnson City, Tennessee
289.)"Ramps"

February 1, 2018

Onsite artist BioNJ, East Brunswick, NJ 08816
288.) BioNJ

2017 Paintings

November 16, 2017

Keynote speaker Colorado Hospital Association, Boulder, Colorado
287.) "Mountain to Mountain"

October 26, 2017

Keynote Speaker at the 90^th Annual Convention of the Nebraska Hospital Association, La Vista, Nebraska 
286.) "The Common Thread"

July 18, 2017

Keynote speaker at the American College of Pharmacy Annual Meeting, Nashville, Tennessee

285.) "My 2 Cents"

June 25-27, 2017

Artist in residence at Anne Boykin Institute 2017 Academy, "Inter-professional Partnerships Grounded in Caring and Science" and leading the opening session as Evocateur at the Christine E. Lynn College of Nursing in Boca Raton, Florida

284.) Painting Day 2: "Taking a Stand"

283.) Painting Day 1: "Hope and Trust."

June 22, 2017

Keynote Speaker Maine Hospital Association Summer Forum, Rockport, Maine

282.) "I am not Batman"

June 3, 2017

Keynote speaker at the Tennessee Hospital Association Summer Conference, Sandestin, Florida

281.)  "One the Beach"

May 24, 2017

Keynote speaker for Common Ground Healthcare Cooperative Annual Meeting, Milwaukee, Wisconsin

280.) "Common Ground"

May 2, 2017

Onsite Painter at Person-Generated Health Data: Evidence for the People, By the People, Patients Like Me, Washington, DC

279.) "Creating New Platforms"

March 30, 2017
A painting for the Creative Collaborative for Liver Health
278.) "Monument Valley"

March 9-10, 2017

Onsite Painter for the Genetic Alliance 30th Anniversary Meeting, Washington, DC

277.) "Vision"

February 20-22, 2017

Onsite painter for Xerox Healthcare, HIMSS17, Orlando, Florida

276.) Painting Day 2: "Drinking from the Fire Hose"

275.) Painting Day 2: "Ignition"

January 31, 2017

Keynote Speaker for Society for Simulation in Healthcare, Orlando, Florida

274.) "Embracing Change"

January 11, 2017

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Keynote Speaker at Georgia Hospital Association, Greensboro, Georgia

273.) "17"

2016 Paintings:
December 24, 2016
A painting for Fred and Joan Holliday
272.) "Potomac Drive-in"

December 8, 2016:

Onsite painter at Learning Health Summit 2, Alexandria, Virginia

271.) "What we wish for"

October 27, 2016

Keynote Speaker Minnesota Alliance for Patient Safety, Brooklyn Park, Minnesota
270.) "Maps"

October 25-26, 2016
Onsite painter for California Accountable Communities for Health Initiative (CACHI)
269.) "Living the Vision"

268.) "Community"

267.) "The Promise"

October 20, 2016

Keynote Speaker for VCU Health Community Health Education Center,

Richmond, VA Facilitated art project.
266.) "Doors"

October 4, 2016

Keynote Speaker for The PoC3 Summit: Point of Care Communication Council, New York, New York
265.) "Point of Care"

September 28, 2016

Keynote speaker Oklahoma Association for Homecare and Hospice Conference, Norman, Oklahoma
264.) "Home Care"

September 25-26, 2016

Onsite Artist at Health 2.0 Annual Fall Conference, Santa Clara, CA

263.) "10,9,8..."

September 16, 2016

Onsite artist at Patients Like Me, Cambridge, Massachusetts
263.) "We are all in the same boat"

September 13, 2016

Keynote Speaker for Medtech Vision 2016, Menlo Park, California
262.) "Swirling"

August 25, 2016
Facilitated art project 
261.) "Unicorn Jess"

August 16-17, 2016

Painting Onsite for Xerox Health at MESC 2016: Medicaid Enterprise Systems Conference, St. Louis, Missouri

260.) "Leverage"

259.) "Uniting the Kingdoms"

June 29, 2016

Keynote Speaker at HIT/Quality Improvement Conference hosted by Oklahoma Foundation for Medical Quality, Norman, Oklahoma
258.) "The Way the Wind is Blowing" 

June 15, 2016,

Panel Speaker for Better Together Health 2016: Patient Expectations and the Affordable Care Act
257.) "Chairs"

June 2, 2016

Keynote speaker, Putting the Patient First, Stanford Health, Stanford,California
256.) "Reasons"

May 19-21, 2016
Cinderblocks, Grantsville, MD
255.) "Love and Tears"

May 17, 2016

Children's Hospital of Philadelphia, Philadelphia, PA

254.) "Poster Session" 

May 16, 2016

Keynote speaker at Cleveland Clinic Patient Experience Summit,

Cleveland, Ohio

253.) "#PESummit"

May 12, 2016,

Keynote Speaker at the Alliance Annual Summit, Madison, Wisconsin

252.) "Adrift in a Sea of Care" 

May 4-5, 2016

Keynote Speaker and onsite painter at 2016 CXO Round Table, San Francisco, California

251.) "Pearls"

250.) "Satisfaction"

April 7, 2016

Keynote Speaker at Spring Inspiration Educational Retreat, Lehigh Valley Chapter of Health Care Office Management, Macungie, Pennsylvania

249.) "MIPS"

March 1-2, 2016

Onsite Artist for Xerox Health, HIMSS 2016, Las Vegas, Nevada

248.) "Investigating the Idea"

247.) "Value Based Care vs. Fee For Service"

246.) "Behind the Scenes"

February 28, 2016

"Salt and Pepper Studios"

January 29, 2016
"Insight" a canvas for Samuel Aronson

2015 Paintings
November 17, 2015

Keynote Speaker Experian Health/Passport 2015 Financial Performance Summit

San Antonio, Texas

245.) "I Drink Your Milkshake"

October 29, 2015

Keynote Speaker for Yale New Haven Health Service Excellence Conference

Bridgeport, Connecticut

244.) "That Which Shifts Beneath Us" 

October 21, 2015

Keynote IQ Consortium 2015 Annual Symposium,

Chantilly, Virginia

243.) "BacktotheFutureDay"

October 9, 2015

Onsite Painter WHITE 2015,

Washington, DC

242.) "Thought Process"

October 2, 2015,

Keynote speaker at 6^th Annual John Hopkins Health System Patient Safety Summit,

Baltimore, Maryland

241.) "Through the Eyes of the Patient"  a facilitated art piece with attendees

September 29, 2015

Keynote speaker at Caradigm Customer Summit 2015,

Seattle, Washington

240.) "Moving Target"

September 28, 2015

Keynote Speaker at Colorado Health Foundation: Building Better Health

Denver, Colorado

239.) "It just does" 

September 24, 2015

Keynote Speaker and Art Facilitator at 2015 LAC-DHS Patient Safety Conference and Awards Ceremony, Los Angeles, California

238.) "Bully"

August 7, 2015

Allscripts User Group Annual Conference ACE15,

Boston, Massachusetts

237.) Painting Title: "This Tower We Build" 

July 28, 2015

Transforming the Health Experience at Razorfish Health,

Hamilton, New Jersey

236.) Painting Title "Blank Slate" 

June 24, 2015

External Focus: Putting the Patient First, Novartis,

San Diego, California

235.) Painting Title: "The Moon Shot"

June 15, 2015

DIA (Drug Information Association) 2015 Conference, Washington, DC

234.) Painting Title: "This Place of Peace"

June 4-6, 2015

#Cinderblocks2 Conference (Sequel to Partnership with Patients) 

Grantsville, Maryland

233.) Painting Title: "#Cinderblocks2"

May 14, 2015

North Carolina Medical Group Managers

Myrtle Beach, South Carolina

232.) Painting Title: "This is a New Shell Game."

May 7, 2015

The Midwest Care Coordination Conference, Evansville, Indiana

231.) Painting Title: "Still Life No Longer."

April 13-15, 2015

HIMSS 2015, Chicago, Illinois

230.) HISTalk Painting Entitled:"The HIStalking Gallery"

229.) HIStalk Painting Entitled: "We Are Your Biggest Fans!"

228.) Caradigm Painting Title: "A Time of Reckoning"

April 10, 2015

Patient Experience Conference 2015, The Beryl Institute, Dallas, Texas

227.) Painting Title: "It was a Bright and Shinning Day"

April 1, 2015

University of Southern Indiana: Nursing Leadership Annual Conference, Evansville, Indiana

226.) Painting Title: "High, Solid, Low Tide"

March 26, 2015

Nursing Leadership Network or Toronto Annual Conference, Toronto, Ontario

225.) Painting Title: "Flying Home"

March 2015

224.) Impact Pediatric Health SXSW,  Austin, Texas 

February 20, 2015

Canada Health Infoway, Toronto, Ontario

223.) Painting Title: "Sharing the Patient Story"

2014 Paintings:

December 6, 2014

Accelerated Cure Project for Multiple Sclerosis, Boston, Massachusetts

222.) Painting Title: "Hatching"

November 13, 2014

HBA 2014:Healthcare Businesswoman’s Association Annual Conference, Chicago, Illinois

221.) Painting Title: "Inspired by Glass"

October 29, 2014

Orion Health, Ojai, California

220.) Painting Titled: "The Eye of Orion"

October 16, 2014

Christus Health, Tucson, Arizona 

219.) Painting Day 1 Title: "Discernment of the Value Based Proposition"

218.) Painting Day 2 Title: "For the Glory of God"

October 10, 2014

WHITE 2014: 5^th Annual Workshop on Health IT and Economics. 

217.) Painting Title: "Climate Change in HIT" 

October 9, 2014

Patient Experience Regional Roundtable, Beryl Institute, Boston, Massachusetts

216.) Painting Title: "The Halo Effect"

October 7-8, 2014

Escape Velocity to a Culture of Health, Cambridge, Massachusetts

215.) Painting Day 1 Title: "The Dance"

214.) Painting Day 2 Title: "A Movement of Movements"

September 30, 2014

IdeaFestival ®: “Thrivals,” Louisville, Kentucky

213.) Painting Title: "This Amazing Energy"

September 26-28, 2014
Medicine X, Stanford, California
212.) Conference Painting: "The Heroes" 

September 15, 2014

National HIT Week, HHS, Washington, DC 

211.) Painting Title: "Reaching the Summit" 

September 4, 2014

SEAHEC South East Area Health Education Center, Wrightsville Beach, North Carolina

210.) Painting Title: "A Time for Disruptive Change"

August 11-14, 2014

HIC2014, HISA, Melbourne, Australia

209.) Painting Day 1 Title: "#Revolution"

208.) Painting Day 2 Title: "We Are Paying Attention"

207.)  Painting Day 3 Title: "The Futurists"

June 15-17, 2014

Keynote Speaker Drug Information Association, San Diego, California

206.) Painting Day 1 Title: "What We Bring to the Party"

205.) Painting Day 2 Title: "Above, Below, Connected"

June 6, 2014

Kansas Health Symposium, Wichita, Kansas

204.) Painting Title: "Breaking Ground"

May 15-16, 2014

National Patient Safety Foundation: Patient Safety Congress

Orlando, Florida

203.) Painting Day 1 Title: "Shadowing"

202.) Painting Day 2 Title: "Highlights"

May 12, 2014

Healthcare Team Week, Indiana University Health, Bloomington, Indiana

201.) Painting Title: "What Was Old is New Again"

May 8-9, 2014

REV 2014, Genentech Meeting, Washington, DC
200.) Conference Painting Title: "Rev 2014"

199.) Painting Day 1 Title: "Living Our Lives"

198.) Painting Day 2 Title: "In the Hallway"

April 29, 2014
Ontario Update 2014, HIMSS Ontario and COACH,
197.) Painting Title: "Onwards and Upwards"

April 23-24, 2014

We Can Do Better, Portland, Oregon
196.) Painting Title: "We Can Do Better"

April 10-11, 2014

Northern Regional Health in Thompson, Manitoba, Canada
195.) Painting Title: "Compass Points of the North" 

Northern Regional Health in The Pas, Manitoba, Canada

194.) Painting Title: "Summer Breeze"

February 25, 2014

Patient Experience Forum, HIMSS, Orlando, Florida

193.) Painting Title: "Himss and Hers"

February 25, 2014
Patient Point Booth, HIMSS, Orlando Florida
192.) Painting Title: "The Patient's Point"

February 19-20, 2014

Lecturer College of New Jersey, Ewing New Jersey
191.) Painting Title: "Hope"

January 29, 2014
Tri State Health Informatics Summit, University of Southern Indiana, Evansville, Indiana

190.) Painting Title: "The Web We Weave"

January 25, 2014
Families USA,  Health Action, Baltimore, MD

189.) Painting Title:"Helping Us to Fly"

2013 Paintings:

November 27, 2013

Saskatchewan Academic Health Sciences Network, Saskatoon, SK, Canada
188.) Painting Title: "Tomorrow"

November 25, 2013
A Painting for Caresync in Florida
187.) Title of Painting: "Caresync"

November 15, 2013

Annual Workshop on Health IT and Economics (WHITE 2013) Washington, DC
186.) Painting Title: "Distressed"

November 7, 2013

Midwest Care Alliance, Columbus, Ohio

185.) Painting Title: "Encapsulated Care"

November 6, 2013

MetaStar Conference, Madison, Wisconsin

184.) Painting Title: "MetaStar" 

October 16, 2013

St. Joseph’s Hospital, Bangor, Maine
183.) Painting Title: "The Hashtag Path of the Beam"

Planetree Annual Conference 2013

Montreal, Quebec, Canada
182.) Painting 1 Title: " From Patient to Empowered "

181.) Painting 2 Title: "The Fire Within"

180.) Painting 3 Title: "Ideas"

179.) Painting 4 Title: "Spirit of Planetree Award"

178.) Painting 5 Title: Planetree

177.) Painting 6 Title: "Lucie's Award" 

September 29- October 1, 2013

Health 2.0 San Francisco, California
176.) Painting Title: "Launch"

September 26-29, 2013

Stanford Medicine X, Stanford, California

175.) Conference Painting: "Such as These"

174.) Painting Title: "The Graphic Interface"

September 21, 2013

Southeastern Michigan Health Information Management Association Annual Meeting, Detroit, Michigan

173.) Painting 1 Title: "Navigating the Portal"

172. Painting 2 Title: "The Rising Sun"

September 17, 2013

2013 AHIMA Health Integrity Summit, Alexandria, Virginia

171.) Painting Title:"The Standard Bearers"

September 16, 2013
National Health IT Week, HHS, Washington DC
170.) Painting Title: "Time to Leave the Island"

Sept 12-13, 2013

KUMC, Kansas City, Kansas

169.) Painting 1 Title: "Higher Ed"

168.) Painting 2 Title: "More Than Just a Number"

September 3, 2013

Advanced Hernia Solutions, Daytona, Florida

167.) Painting Title: "The Plural Apostrophe"

August 28, 2013

Iowa Healthcare Collaborative (IHC), Altoona, Iowa
166.) Painting 1 Title: "The Hospital That Flies"

165.) Painting 2 Title: "Our Crest"

August 12, 2013
164.) "Patients Included," a Painting for Lucien Engelen

August 7, 2013

The 32^nd Annual Colorado Health Symposium, Keystone, Colorado

163.) Painting 1 Title: "Beyond the Bridge"

162.) Painting 2 Title: "The Rattle's Warning"

August 5, 2013

Merge Live User Group Conference, Chicago, Illinois

161.) Painting Title: "#MergeLive"

August 2, 2013
160.) The Painting "Eliza" for Eliza Corp.

July 10, 2013
159.) Script Your Future: Challenge Award Painting

June 23, 2013

Panel Presentation, Academy Health’s Innovation Station at ARM, Baltimore, Maryland
158.) Painting Title:

June 17-18, 2013

Mississippi Calling: Healthcare Symposium- ePatient Literacy, Jackson, Mississippi

157.) Painting 1 Title: "View From The 50 Foot Patient"

156.) Painting 2 Title: "Altar Call"

June 12-13, 2013

Collaboration Across Borders IV, Vancouver, Canada
155.) Painting 1 Title: "Red Rover"

154.) Painting 2 Title: "Snake House"

153.) Painting 3 Title: "This is the Pearl"

June 6, 2013 MedCity Engage, Washington, DC
152.) Painting Title: "My Baby"

May 31, 2013 Genetic Alliance and Intermountain, Powerful Patient Data: Genomics and Family Health History in Health IT, Salt Lake City Utah
151.) Painting Title: "The Golden Ring"

May 30, 2013

Kaiser Permanente Innovation Retreat, Denver, Colorado

150.) Painting 1 Title: "Post Industrial Camp Fire"

149.) Painting 2 Title: "Things to Come"

May 11, 2013
Louisville Hackathon, Washington, DC
148.) Painting Title: "#Coderwb"

May 9, 2013

California HIE Stakeholder Summit, Sacramento, California 

147.) Painting 1 Title: "Innovating the Wheel"

146.) Painting 2 Title: "The Night Rainbow"

April 26, 2013

The Role of Patient Engagement:  Diverse Perspectives from Our Panel of Experts for The Children’s Hospital of Philadelphia’s, Center for Biomedical Informatics’ Annual Healthcare Informatics Symposium, Philadelphia, Pennsylvania
145.) Painting 1 Title: "The Story Within"

144.) Painting 2 Title "Moving"

April 21, 2013
HealthFOO: The Unconference
143.) Painting Title: The Open Door

April 17, 2013

Medseek Conference, Austin, Texas  

142.) Painting 1 Title: "Yin/Yang in Healthcare"

141.) Paining 2 Title: "Babel Revisited"

April 11, 2013

NCAL HIMSS Chapter on Patient Engagement, Fairfield, California
140.) Painting 1 Title: "Sky"

139.)  2 Title: "The Heart of the Matter" 

April 10, 2013

ACMA (American Case Managers Association), San Diego, California
138.) Painting 1 Title: "Two Cities"

137.) Painting 2 Title: "Esperanza"

March 25, 2013

HDX Conference, Boston, Massachusetts

136.) Painting Title: "Oncoming Tide"

March 21-22, 2013

Third Annual Crossing the Infrastructure HITECH Meaningful Divide Symposium: The Patient and Technology:  Partners in Care, King of Prussia, Pennsylvania
135.) Painting 1 Title: "The Standard Bearer"

134.) Painting  2 Title: "Pop Health"

March 20, 213

Keynote Speaker for Maine Association for Healthcare Quality, Bangor Maine
133.) Painting Title: "Process of Care" 

March 19, 2013
Patient Safety Awareness Week, Calais, Maine

132.) Painting Double Side Title: "Day/Night"

March 10, 2013

Our City Film Festival, Washington DC
131.) Painting Title: "#OurCityFilmFest"

March 6-7, 2013
Expectations: University Hospitals Case Medical Center has a Quality and Patient Safety Fair, Cleveland, Ohio
130.) Painting Title: "This Ship"

March 5, 2013
HIMSS Patient Experience with HIT, New Orleans, Louisiana

129.) Painting Title 1:"Portals and Cores"

128.) Painting Title 2: "Randomized Care"

127.) Painting Title 3: "Woot! The Patients are coming"

February 26, 2013
Edelman Meeting, Washington DC
126.) Painting 1 Title: "External Drivers and Internal Swirls"

February 22, 2013
Selling Sickness, Washington, DC
125.) Painting Title: "For Him"

January 29-30, 2013
C-TAC(Coalition to Transform Advanced Care) National Summit on Advanced Care, Washington, DC
124.) Painting Title: "It is 7:20 Here"

2012 Paintings

December 12, 2012
AMIA (American Medical Informatics Association) 7th Annual Invitational Policy Meeting: Health Data Use, Stewardship and Governance: Ongoing Gaps and Challenges
123.)Painting Title: "Break Out Session"

December 11, 2012

ONC Annual Meeting, HHS, Washington< DC
122.) Painting Title:"Root Certificate"

November 30, 2012

Partnership for Patients, Washington, DC
121.) Painting Title: "Organic Change"

November 14, 2012

University of New England, Portland Campus, Portland, Maine
120.) Painting Title: "Med School"

November 9, 2012

Keynote Speech eHealth Summit for all South Dakota healthcare providers and REC partners, Sioux Falls, South Dakota
119.) Painting 1 Title: "Falling into Place"

118.) Painting 2 Title: "Connected"

November 8, 2012

TedX Detroit, Detroit, Michigan
117.) Painting Title:

October 27, 2012
PCORI
116.) Painting Title: "Trapped Energy at PCORI"

October 24, 2012

Keynote Speaker, Korea Healthcare Congress, Seoul, Korea
115.) Painting 1 Title: "The Data Tree"

114.) Painting 2 Title: "The Fiscal Cliff"

October 18, 2012

Avera Nursing Conference, Sioux Falls, South Dakota 
113.) Painting Title: "Hospice Moon"

112.) Painting Title: "10 Years Nurses"

October 11, 2012
Open Notes, Washington, DC
111.) Painting Title: "Open Notes"

October 9-10, 2012 Buffalo, NY

P2 Collaborative of Western New York
110.) Painting Title: "The Senior Fair"

110.) Painting Title: "The Canyon of Care" 

October 4-5, 2012

CorePoint User Group Meeting, Dallas, Texas
109.) Painting Title: The Magic Porridge Pot"

108.) Painting Title: "Of Forks and Spoons"

October 1-2, 2012

AHIMA Annual Conference, Chicago, Illinois
107.) Painting Title: "Under One Tent"

106.) Painting Title: "We were here all along"

105.) Painting Title: "The Launch"

September 27-28, 2012

Stanford Medicine X 2012, Stanford, California
104.) Conference Painting Title: "Medicine X"

103.) Painting Title: "Ignite"

102.) Painting Title: "Skinny Genes"

September 6, 2012

Annual Kaiser Permanente IT Summit, San Francisco, California
101.) Painting Title: "Vision"

100.) Painting Title: "In the Hedgerows"

August 9, 2012

Association for Healthcare Documentation Integrity (AHDI) Annual Conference, Indianapolis, Indiana
99.) Conference Painting Title: "The Orchestra"

98.) Painting Title: "The MT Compass Star"

97.) Painting Title: "The Window"

August 7, 2012 Medstartr Painting, New York, New York
96.) Painting Title: "Medstartr"

August 1-3, 2012

HIC 2012 Sydney, Australia
95.) Painting Title: "Running out of Time"

94.) Painting Title: "Counter Clockwise"

July 10, 2012
Script Your Future Award Paintings
93.) Painting Title:1

92.) Painting Title:2

91.)  Painting Title:3

90.) Painting Title:4

89.) Painting Title:5

June 5-6, 2012
HDI (Health Data Innovation) III, Washington, DC
88.) Painting Title: "Health Data Palooza"

May 30, 2012
Avatar Annual Meeting, Orlando, Florida
87.) Painting Title: "Stages"

86.) Painting Title: "The Mirror Reflection"

May 18-20, 2012

Health Foo Camp, Cambridge, Mass
85.) Painting Title: "Community"

May 18, 2012
84.) Impatient Patient for Roni Zeiger

May 17, 2012
Learning Health System Summit, Washington, DC
83.) Painting Title: "Chaordic"

May 7 -9, 2012

ICSI Colloquium, Minneapolis, Minnesota
82.) Painting Title: "Reconciliationship"

81.) Painting Title:"The Lone Nut"

80.) Painting Title: "The Care Team"

April 27, 2012

Panel Speaker, Patient Safety and High Performance Leadership Summit: Issues in Governance, National Collaborative, and HIT, National Press Club, Washington, DC
79.) Painting Title: "Hubris Hospital:The Healthcare Tsunami"

April 25, 2012

“The Power of Long Stories,” 5^th Annual Patient Safety Symposium, Columbia, South Carolina

78.) Painting Title: "Flame of Hope"

77.) Painting Title: "Silos"

76.) Painting Title: "Awards of Transparency"

April 17-18, 2012

Keynote Speaker, Arkansas Foundation for Medical Care 19^th Annual Quality Conference, Hot Springs, Arkansas

75.) Painting Title: "Natural State"

74.) Painting Title:'The Moral Energy"

April 11-13, 2012

TEDMED onsite artist Washington, DC

73.) Painting Title: "The Dance of Care"

72.) Painting Title:"Death"

71.) Painting Title: "Drones"

70.) Painting Title: "Missing Ingredients"

69.) Painting Title: "The Unmentionables"

68.) Painting Title: "Sacred Cow"

67.) Painting Title: "One Day Pass"

66.) Painting Title: "Flight"

65.) Painting Title: "The First is Last"

64.) Painting Title: "Spit"

Painting Title: "Space"

April 5, 2012

Linkage Conference in Columbus, Ohio
63.) Painting Title: "Your Choice: Darkness or Light"

62.) Painting Title: "The Linkage Pin Wheel" 

April 4, 2012

“A Story Before Dying” Maine Quality Counts, Augusta, Maine
61.) Award Painting Maine Quality Counts

60.) Painting Title: "Trees of Maine"

March 26^th, 2012

HDX (Healthcare Experience Design) hosted by MAD POW, Boston, Massachusetts
59.) Painting Title: "Wind of Change"

March 16, 2012
IHI Meeting, Washington DC

58.) Painting Title: "Three Stages of Meaningful Use"

February 28, 2012

Testimony before NCVHS Silver Spring, MD

57.) Painting Title: "Measure for Measure"

February 23^rd, 2012

HIMSS12 Leading from the Future Las Vegas, Nevada
56.) Painting Title: "The Island of New Jersey" 

55.) Painting Title: "Journey to Joy"

February 16-17, 2012

Avera Health Care Forum, Sioux Falls, South Dakota

54.) Painting Title: "EMR Kudzu"

53.) Painting Title: "The I of the Storm"

2011 Paintings

December 29, 2011
52.)  Speakerlink Painting

November 10, 2011
Aligning Forces for Quality
51.) Painting Title: "The Cost Benefit Analysis"

November  7, 2015
Benevolent Media Festival
50.) Painting Title: "3.2%

November 1-2, 2011

OCHIN 2011 Learning Forum, Portland, Oregon

49.) Painting Title: "50%"

48.) Painting Title: "The Faces of Meaningful Use"

October 18-19, 2011

Adventist Health Sacramento, CA
47.) Painting Title: "CDS"

46.) Painting Title: "Open and Transparent"

45.) Painting Title: "Bursting into Song"

October 11-12, 2011

Sharp HealthCare Quarterly Leadership Development Session, San Diego

44.) Painting Title: "My Sharp"

43.) Painting Title: "The Sharp Dance"

42.) Painting Title: "1000 Cranes" 

October 7, 2011
Hendricks Health, Abilene, Texas
41.) Painting Title: "The Story" 

 

40.) Painting Title: "How May I Help You?"

39.) Painting Title: "Mission Statement"

October 3, 2011
ONC Consumer Event: The H in HIT, HHS, Washington, DC
38.) Painting Title: "The I in HIT"

September 29-30^th, 2011

Keystone Beacon Community, Geisinger Health in Harrisburg, Pennsylvania
37.) Painting Title: "The View from Geisinger"

September 25-27, 2011

Health 2.0 2011 San Francisco, CA
36.) Painting Title: "Health 2.0 Street Art"

September 18, 2011
Unite for a Healthy Future, UN Summit on Non Communicable Diseases, New York, New York
35.) Painting Title: "I Grok in Fullness"  

September 14-15, 2011
AIM, Oregon
34.) Painting Title; "ONC Love Story"

33.) Painting Title: "The Beacon Lights" 

32.) Painting Title: "Don't Miss the Train"

31.) Painting Title: "HIT Oath: The I in HIT" 

June 28- July 1, 2011

Client Symposium for Avatar International, Orlando, Florida

30.) Painting Title: "#PatientOne"

29.) Painting Title: "The Burning Platform."

June 16, 2011,

Partnership for Patients Kick-off Meeting, Washington, DC

28.) Painting Title: "Partnership with Patients"

June 13 -14, 2011

QUEST National Meeting, Premier, Nashville, Tennessee

27.) Painting Title: "The Three Iris Eye."

26.) Painting Title: "The Turtle's Path"

25.) Painting Title: "Generational Health Care"

24.) Painting Title: "Avoiding CA-UTI"

April 27-28, 2011

Microsoft Connected Health Conference 2011, Chicago, Illinois
23.) Painting Title: "Alpha and Omega: The A to Z of Me" 

April 19, 2011
RTI Forum: Patients as Partners in Care: Engaging Patients through Health IT, Washington, DC
22.) Painting Title: "One of Us. One of Us."

April 11-12, 2011
Oklahoma Foundation for Medical Quality Rural Hospital Conference, Oklahoma City, Oklahoma

21.) Painting Title: "HIT Glue"

April 7, 2011
Health Affairs Briefing: Still Crossing the Quality Chasm, Washington DC
20.) Painting Title:  "Crossing the Quality Chasm"

March 28, 2011
19.) "Careticker" Painting for Chiara Bell

March 11, 2011

Bellin Health, Green Bay Wisconsin
18.) Painting Title "Quilting Bee" 

January 2, 2011
Social Justice Camp II, Washington, DC
17.) Painting Title: "The Empowered are Back"

2010 Paintings

December 20, 2010
A Painting for Alex Drane's Father
16.) Painting Title: "We Meets East"

December 5-6, 2010
IHI Patient Activist Summit, Orlando, FloridaNovember 30- December 2, 2010

15.) Painting Title: "Patient Centered Care."

November 22, 2010
Art show at Politics and Prose, Washington DC
14.) Painting Title: "The Menu Set"

October 7-8, 2010

Health 2.0 Conference, San Francisco, California
13.)Painting Title: “Bridging the Great Divide”

September 25-27, 2010

“The Worst Pain Imaginable” Speech and Onsite Painting, e-Patients Connections from Kru Research, Philadelphia, Pennsylvania

12.) Painting Title:"Closed Data Loop"

11.) Painting Title: "Point to Point Communication"

10.) Painting Title: "The Future of HIE"

July 29, 2010

“e-Patient Ephemera” Guest Artist, Clinovations Art Gallery Show, Washington, DC
9.) Painting Title: "Apples to Apples"

8.) Painting Title: "Office Hours"

7.) Painting Title: "Are You Alright?"

6.) Painting Title: "Give Us Our Dammed Data"

5.) March 18, 2010
Painting Title: "Death of the Paper Transfer"

2009 Paintings

4.) November 2, 2009
Painting Title: "We Need More Nurses"

3.) October 2, 2009
Moca Gallery Show
Painting Title: "The Embrace"

2.) September 30, 2009
Painting Title: "73 Cents"

1.) May 30, 2009
Painting Title: "The Medical Facts Mural" 

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Regina Holliday – on Patient Advocacy

Recently, planners of an upcoming event asked me some questions and here are the answers. 

1.    How would you define the role/responsibilities of a “patient” advocate?

The patient advocate can be defined in several ways.  Sometimes this is an official staff member in a facility.  They can operate as a patient navigator or customer service operative.  In the best scenario, their job is to help the patient understand the processes and options in care within the facility.  In the worst scenarios, the patient advocate operates as a tool of damage control to damper litigious action of distraught family members.

Sometimes the patient and family hire a patient advocate from a registry like the AdvoConnection.  In this case the advocate may be a nurse, a doctor, or a trained and experienced caregiver who helps the patient while hospitalized or at home. They obtain medical records, ask questions, keep notes, help patients make their own difficult medical decisions, and review and negotiate medical bills.

Often the patient advocate is a close friend or family member who is not paid for their service. This advocate provides many of the same services as a paid advocate, but often is learning on the job.  Occasionally they have a background in medicine, and use that knowledge to great success helping the patient ask the right questions and get appropriate care at the correct time.

Finally, there are patient advocates focused on policy.  I am often classified among this category, although I prefer the term patient activist.  A patient advocate focused on policy attends local, regional, state, and federal meetings to provide a patient perspective in policy decisions. 

*(This is by no means meant to be an exhaustive definition of a patient advocate. Just how I define it in response to this question.  There are several other resources out there to learn more http://pacboard.org/2016/03/09/patient-advocacy-vs-medical-advocacy-view-from-the-pacb/ is one.) 

** (Additional edits were made on 10-5-16 to clarify the responsibilities of patient advocates in relation to the AdvoConnection.) 

2.    You do a number of these sorts of speaking engagements and presentations around the country. Are there some unifying themes--clear trends --- you see, common ideas that many people share about their worries or attitudes toward health care? Patient safety? Patient advocacy?

I have been attending medical conferences and public meetings for the past seven years. In that time I have watched HITECH legislation morph and change.  Patient access to data at stage one of Meaningful Use had budding teeth and at stage two it got poor fitting dentures.  I have watched the ACA become the law of the land, only to see constant steps to repeal it. 

I watched the concept of patient engagement grow from a demand in small healthcare meetings, to a hashtag on twitter  (#patientsincluded), to trend of conferences inviting patient speakers.  I hoped that the next step was true partnership in decision-making and design.  Sadly, of late I have often heard that “patient engagement” was out of fashion.  We are now onto MIPS and MACRA and massive ACO’s. 

I have watched patient safety advocates work for years with very little attention paid to their cause. I was happy to see Value Based Care begin to role out, as it addressed so many concerns of these advocates.  I am saddened to hear how many attendees at conferences expound on their love for fee for service.   Or twist the intended purpose of reducing readmissions, by leaving patients in hallway for days to be “observed,” but not admitted after complications.

The most apparent trend of the past seven years is that there are powerful lobbyists in this industry that will do anything to keep the status quo alive and well in healthcare.  There are also amazing individuals, often on Twitter, (check out #hcldr), that will not stop fighting for the patient voice and the positive disruption that comes when data silos are leveled and technology is used appropriately. 

3.    Will patients ever be like consumers of other products? Outside of elective procedures or choosing a birthing place/option, how much real consumer choices do patients have in their health care? How would you like to see those avenues expanded or re-routed?

I hate the word “consumer” when applied to healthcare; it assumes we take and never give.  Partnership in care requires two-way communication.   Care is always about choice.  When we embrace price transparency, a patient can decide which facility has the most affordable MRI procedure.  When we have medical record data transparency coupled with a clinical trials database, a cancer patient can decide the best personal path for their care.  Which may include a hospice path, if that is their choice. 

We have a choice right now.  The difference in healthcare is that we have to fight for that choice, whereas in retail it is expected that customer will decide which items to buy rather than the shopkeep.     

4.    How would you like to see health care systems and hospitals--particularly public and teaching systems-- involve patients or their advocates in meaningful aspects of care best practices, policy making and priority-setting?

Patients, caregivers, and patient advocates need to be present in meetings throughout the facility.  For far too long we have been forced into the role of lobby designers.  We ask that you invite us to take part and provide appropriate recompense for our time.  Or schedule the meeting after the workday is done at the facility.  That would be fine.  Then everyone at the table can be the unpaid volunteer that patients and family caregivers are so often asked to be.  

You might want to make sure we can have those meetings next to a playroom though, so our children can play together while we work together to create new policy. Because whether you are a patient or a provider, childcare is expensive.  

5.    How would you describe your painting style and approach?

My art looks like the work of the children’s book illustrator Garth Williams and the activist painter Diego Rivera fused.  As a few people have told me over the years,  “Your work is often sweet and disturbing at the same time.”

  

6.    Describe the healing benefits and/or the impact that making art that tells stories about health care can have on patients, survivors, care providers?

As far as a healing benefit, the art process is a type of meditation and that can help soothe the soul.  It is a very nice feeling to be in the zone and at one with the cosmos.  But the creation of art could feel like a nail ramming through my hand, and I would still create.  I use art as a tool and the goal is to impact others.

It is very easy to push aside someone’s story, if that story is only the bullet point on a slide or the footnote in an academic article.  It is much harder to look away at the painting on someone’s back, screaming at you like so many wheals and welts.  To know this image is someone’s story. To look at the painted eyes that look into yours and seem say, “I died, and it is all for naught if you do not act.” 

7.    Of all the art you’ve made--your Walking Gallery, the murals -- can you choose one piece and describe it and explain why it’s a piece that you especially want to share?

My favorite piece is “Are you alright?”  In that painting, I captured my late husband Fred.  He stares at me from that painting like he is still with me.  Still alive on pigment covered canvas.  Still urging me to help him, a patient. 

And every day I do exactly that.

Unfinished

Yesterday, August 27 was the celebration of Jess Jacobs life in California.  A few members of the Walking Gallery were able to attend.  They represented the 396 members who could not be there.   We all cherish her memory.

The east coast friends of Jess gathered Saturday, August 20, to mourn her passing and celebrate her life.  I came to Whitney’s house in my usual fashion with a hoard of supplies.  I brought tables, chairs, paint, brushes, and glitter.  We were going to make unicorn art.  

I also brought a lot of box tops for education to cut out and prepare to mail to raise funds for my son Isaac’s school.  When someone is very sad it helps to keep very busy.

In Whitney’s back yard the cicadas hummed and I stood presiding over a table of industrious friends of Jess. We painted Unicorns and taped down box tops.  We added glitter and told stories of a life. 

Many people came over to our table to trace and paint unicorns.  One of those people was Ross Martin.  He decided to freehand draw his unicorn in ink.  He said he would come back to finish it.   The afternoon progressed, more paintings were completed, and more stories were told.  Soon it was time to thank Whitney and leave.

I packed up my cacophony of art.  I hugged Ross goodbye.  He said, “I did not get to finish my unicorn.”  I said that was okay.  It would be incorporated in a larger piece.  We don’t always get to finish what we start, but our friends will carry it on. 

I put all the unicorns together into one piece of art.  I mailed that painting to Jess Jacobs’ family. It should get there next week, after the celebration is over, after friends will go home.   It will come in the quiet time.

It will represent our oath to tell her story, to finish what she started.

Color It Blue

I flew to St. Louis, Missouri to attend the Medicaid Enterprise Systems Conference August 16-17, 2016.  Xerox Healthcare hosted me and I would be painting in their booth. When I arrived, I walked through the exhibition hall and saw all the usual give-a-way swag: Pens, water bottles, USB sticks, and candy.  I rolled my paint supplies into the Xerox booth and set up my easel next to the item Xerox was giving away. 

It was a coloring book and colored pencils.

As I painted for two days with the Xerox team, I heard so many conferences attendees eagerly thank the team for bring coloring books.  The attendees said they would color on the flight home, in conference sessions, or color just to let go of stress.

The coloring book was such a major part of the conversation that I added it into the painting: “Uniting the Kingdoms.” The upper part of the painting is black and white, waiting to be colored.

As I spoke with attendees, I heard many attendees talking about each state’s Medicaid program as though it was a little kingdom to itself.   So I painted the kingdoms being sewed together by the cables of technology.  I also created a bridge of Legos uniting two kingdoms and honoring a nearby booth that had Legos available for attendees.

On the second day we had a mini gathering of The Walking Gallery, as three Xerox staff members had recently joined the movement.  To the left is Allyson Burroughs telling the patient stories of her father, grandmother and mother.  Then I wear my letter A for "Little Miss A type personality."  Next is Lauretta Sechrest telling the life story of her father who passed away recently.  Finally, to the far right is Tiffani Doyle who tells the story of her sister-in-law and her first born son. 

The second day I painted “Leverage.” 

In this painting, I depicted levers and fulcrums.  Each fulcrum was a piece of the United States flag and it represented the legislation upon which we build our healthcare framework.  A patient, vender, or provider was working each lever.  Each lever propelled into the air a patient, vender, or provider toward population health.  In the center background of the painting was an arch.  Blue sky was in the center and gray sky was swirling all around the arch.  This is the future of healthcare.  It could be gray swirling storm clouds or beautiful blue.

I hope we color it blue. 

The First to Fall

       

On August 10, I was so excited to share that we had reached another milestone in the Walking Gallery.  Five years into our patient rights movement we had reached 400 members!   I even shared the post that lists where everyone lives.  I loved the picture blogger chose for the post.  It was me and Jess assembling the Walking Gallery in its lego form.

A lot of people read that post and reminded me they had moved to a new state or country.  I dutifully changed the post for each request.

Today I added a new country to the post.  I called it Heaven.  I placed Jess Jacob there and cried.

Isaac saw me crying and asked me why.  I told him Jess Jacobs died.  Our friend from DC we played legos with and visited in the hospital.

Jess had been fighting for her life for years. You would have never known that from looking at her.  She was a statuesque beauty who understood health policy.  She was gracious and kind and great at twitter. 

Jess Joined the Walking Gallery in 2012 and her jacket is number 211. "Is she okay?" Her patient story told about her POTS condition.  

When I painted her jacket, I depicted one of the times she fell faint to the pavement. She woke to find strangers looking down upon her.  She would laugh off such medical adventures and do her job and help her friends.  She helped build the lego Walking Gallery and helped prepare for the 2012 gathering in DC.  

In the summer of 2013, I moved to Grantsville and did not get to see Jess as much in person.  She began to have more problems with her care and we created a secret group on facebook to help Jess.  I recruited lovely friends who live in DC and who had never met Jess before but would come over to check on her and make sure she was okay.  Jess reached out to many other close friends and added them to the group so she could have advocates and people to help.  

For the past two years I have had to watch from afar as this wonderful woman grew sicker.  I watched her fight to keep working, fight to be admitted to hospitals, and fight to be believed.  

I watched as so many people fell away from her life as it became clear that she was not getting better.  

I asked her to join us at Cinderblocks 2 in May.  She said she would love to go but she thought she was probably too sick. 

This is the way I would like to remember Jess.  I see her at my dining room table building lego mini figures with Isaac. 

But I will always see another Jess, as I advocate for better healthcare around the world.  I will see her as a patient that the system failed to care for.  I will see her struggle and I will fight for change.

I will never forget she was the first to fall. We will miss her always. 

How to make a tire planter

This is a medical advocacy blog. So some of you may wonder what does tire planters have to do with healthcare?

This summer in Grantsville, MD, colorfully painted tire planters edged the side of Route 40 and delineated the arts and entertainment district in Grantsville.  The students of Grantsville Elementary, their art teacher Kelly Lasher, and other local adult artists created the planter art using rice paper and Dye-Na-Flow dyes. I assembled the art and facilitated the project.  Many a town resident has commented,  "It sure brightens things up!"

And it does.  Sometimes at the end of hard day you just want a little something to brighten things up. 

Guys Tires, Northern Outreach Center and Mountaintop Truck Driving Institute of Garrett College, and local citizens donated the tires. That makes me very happy.  I love to reuse, reduce and recycle.  These tires were destined to end up as trash and they became art instead. 

Chestnut Ridge Nursery of Grantsville donated flowers for the planters.  Local volunteers prepared the tires for display. The Greater Grantsville Business Association helped pay for the flowers and the town of Grantsville approved this volunteer public art project during town council meetings. The planters have been on display since May and the colors are still bright!

We came together as a community and made something beautiful.  Isn't that what happiness and health is all about? 

How to Make a Tire Planter

1. Cut out the scallop pattern with a sawzall

2. Flip tire inside out. (Three strong people are needed for this step.)

3. Scrub tire clean with a degreaser. Rinse and let dry.

4. Prime with gray primer spray paint and let dry.

5. Paint with high quality exterior latex inside and out.  Use bright, light colors, as the planter will be very hot if painted in a darker shade.   Let dry.

6. Apply second coat exterior latex. Let dry.

7. Create artwork on rice paper by drawing an image with an ink pen or fabric marker and then paint using Dye-Na-Flow dyes.  After the art is dry, cut out the art image.  

8. Decoupage the art onto the tire using Golden Gel Medium Soft Gloss. Let dry.

9. Spray seal tire with acrylic gloss sealant. Let dry.

10. Staple chicken wire fencing to inside hole on tire.

11. Place planter in yard and add mulch.

12. Add a bag of potting soil.

13. Flowering plants are added.

14. Mulch around plants and water.

15. Display until fall and place in storage before hard freeze.