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Thursday, July 11, 2019

#Cinderblocks6 Agenda

Cinderblocks6: Conference Day 1

We thank our Sponsor: Learning Health Community 

On Thursday, July 18 we will meet at 9:00 am the WoodmenLife Hall at 168 Miller Street, Grantsville (near the tennis courts in the town park.)

Coffee and snacks are provided.

9:00 Opening remarks are by Regina Holliday, conference planner and founder of the Walking Gallery of Healthcare.

9:15-10:00 Danny van Leeuwen, Boston, MA Speaks on the many things we do to improve healthcare: playing, speaking, blogging, clinical care.

An action catalyst empowering people traveling together toward best health, Danny wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. A patient and caregiver activist writing, speaking, and advising on learning what works for people in their health journey: informed decision-making, patient-centered research, communication at transitions of care and technology supporting solutions created by and for people. Serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. Reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Blogs weekly ( and recently published in BMJ and JoPM. Plays baritone saxophone

10-10:20- Piper's Dankworth Sutton “Who said heart failure?”

When someone says "heart failure" and your name in the same sentence, it gets your attention. When Piper Dankworth Sutton found herself in that very situation, it started a journey that made doctor to doctor and doctor to patient communication critical to her survival -what was and wasn’t said, and how it was said, impacted the complex treatment decisions that followed.  Piper will share the story of her heart transplant experience, including how the tables are turning on how communication drives both treatment and recovery outcomes, with a greater emphasis now on patient-centered care, and how doctors can better communicate with patients in heart transplantation, and across the healthcare system.

Heart transplant recipient Piper Dankworth Sutton, now retired, is a visiting volunteer for Mended Hearts, a member of the Family Patient Advisory Council for Inova Heart and Vascular Institute as well as the Heart Failure Collaboratory. In addition, she participates in organizational and pharmaceutical heart failure patient forums. Prior to retirement, she was a fundraising executive for non-profit healthcare organizations including Inova Health System Foundation, National Osteoporosis Foundation, and JDRF.

Casey 10:30-11:00 Title: 
Facebook: Dangerous to human health 
Imagine finding out that a dangerous creep has been living in your house - in your attic, in your closets, in your bathroom, in your bedroom, in your kitchen, in every room of your house - for years. Imagine discovering that you invited that creep in without realizing you'd done so. 
If you're still using Facebook, you're living with that dangerous creep.
Casey Quinlan is part of a group called the Light Collective, working to build safe harbor, off of Facebook, for community building that doesn't include having to let dangerous creeps live in your house. She'll share how the security holes in Facebook let dangerous creeps put patient communities at risk around the world, and what the Light Collective is doing to shift the power paradigm in digital community building.

Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her standup comedy set. When she got a cancer diagnosis five days before Christmas, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most of a Daunting Gift” about managing medical care, and the importance of health literate self-advocacy. She writes, she speaks, she facilitates the Festivus Airing of Grievances in healthcare. Her favorite people to work with are those who want to fix the system, not serve the status quo.

11:00-11:45 Sound , Meditation, and Healing 

Shannon and Selomon will present how sound and meditation can alter and help with the healing process. After a short discussion on the methods and frequencies used for healing they will perform a short sound meditation experience prior to lunch to get everyone relaxed and prepared for the rest of the event. 

Shannon is a Transformational Coach that is certified in and works with a variety of holistic, artistic, and musical modalities to help others with their healing process and finding their true purpose.  Find more about her and her offerings at

Selomon is a certified Meditation Teacher and has been teaching groups and individuals alternative healing techniques for almost 10 years across the country. Learn more about him at
Lunch is at noon

12:30-1:00 Ileana Balcu, Woodbridge, Ileana Balcu, Woodbridge, NJ  “Digital Health for Young Adults" 
 Our children are growing up. As decades-long observers of the healthcare system in US and in the world we rejoice about the possibilities and we worry about the fallout. A young adult growing up in the digital world will most certainly find a way to get health information and the healthcare they need. Can we help them find the good stuff and weed out the bad stuff? Can we teach them find the best most affordable care they need. Can we enroll them into making the healthcare system better?
Together, let's investigate what we need to guide our youth to living healthy and finding the right care in sickness. 

Ileana Balcu is a Healthcare IT Project Manager for Dulcian, Inc. She manages The Chronic Care Management software used by hundreds of primary care practices and a budgeting and reporting system for the Office of Alcohol and Substance Abuse in the state of NY. Since 2003 when she had preeclampsia, Ileana became an empowered patient and a patient advocate. She was a volunteer IT Director for The Preeclampsia Foundation and Board Member and Communications Lead for the Society for Participatory Medicine. Ileana teaches the New Media and Health Communications course at The College of New Jersey. As a caregiver, she helped Paul Dorsey manage his cancer journey.  

1:00 to 1:30 Mike Douglas

Being Patient and Storm-trooper: POTS and the 501st Legion

1:30-2:00 Mark Scrimshire 

Mark will speak about BlueButton and the impact of the CMS interoperability rule

2:00-2:30 Donna Jo Brenneman, Executive Director of Garrett County Hospice 
Donna Jo will speak about the Mission of our local non-profit hospice.

2:30-3:00 Thomas Vose, Director of the Ruth Enlow Library of Garrett County 

Thomas will speak about the library as social infrastructure.

3:00 -5:00 Playing in the Park!
The Joint Training Facility, a mobile sports and family entertainment business will be running games in the Grantsville Town park. The owners of JTF are two military veterans - Ronda Johnson with 12 years of Army service and Michael Mc Closkey with 14 years in the Marine Core. The games we will play include- Snookball, Connect 4, Checkers, and Box Hockey.

Thank you to our reception sponsor: CareSet Systems

7:00pm to 10:00pm Cinder-Block Party
On Thursday, July 18th at 7:00pm a party will be held at Salt and Pepper Studios: the home of the Walking Gallery, 189 Main Street in Grantsville. Conference attendees of #Cinderblocks6 and members of the public are invited.  Refreshments will be provided and the party is free and open to the public.  

Conference Day 2,
On Friday, July 19 another conference day begins!  

We thank our sponsor: Abridge

At 9:00 am we meet at Woodmen Building 168 Miller St., Grantsville. Coffee & snacks are provided.  
9:00am Opening remarks Regina Holliday
9:30-10:00 Paul Edwards, Grantsville, MD County Commissioner for Garrett County
Paul will present on the state of the county and the history of Grantsville.

10:00-10:40 John Johnson, Nicholas and Jessica Whitehead 

The team will present on the Adult and Teen Challenge, Tri State. They will update us on plans for an addiction treatment center in Grantsville.

10:45-11:00 Ashley Elliott
Ashley will focus on the hurdles between being an addict and still facing health issues.

11:00-11:30 Steve Bortz, Garrett County Habitat for Humanity, Steve will present on the expansion of the program into Northern Garrett.

Steve Bortz joined Garrett County Habitat for Humanity in February 2019 as the Executive Director. Prior to that he served as the Garrett Regional Medical Center Vice President of Foundation with responsibilities including Major Giving, Special Events and Capital Campaigns. Prior to joining the hospital Steve served as Chief Operating Officer for the Baltimore Area Council Boy Scouts of America serving 50,000 families in Central Maryland and managing all aspects of finance and operations. He is a graduate of Loyola University Maryland and holds Non Profit Executive Director and Development Certifications from Murray State University.

11:45-12:30 Mark Boucot, President and CEO of Garrett Regional Medical Center, an affiliate of WVU

Mark will present on the hospital’s expansion and its continued embrace of value based care and the hospital’s plan to embrace cancer care in Western MD.  

12:30-1:00pm Lunch 

1:00-1:30 Shiv Rao, founder of Abridge.AI. 

In short, he's passionate about humans and humanity and is working on a solution to help patients record health care conversations.

1:30-2:00 Dave DeBronkart, YES you should Google! Here's why.

By far the most common complaint e-patients get from doctors, and that we HAVE about doctors, is when they say "Don't confuse your googling with my medical degree."  That's disempowering: it tells us to stay uninformed, and (worse) to keep out of the way while they do their work. 

It turns out there's good solid evidence for why you SHOULD Google. We'll discuss evidence from around the world, including things you can show the doctor to explain why you do.

"e-Patient Dave" deBronkart is a googler, a cancer survivor who met Regina in 2009 when her husband Fred was sick. For Fred it was too late, but Dave and Regina have both become activists and international speakers for the kind of informed empowerment that modern patients deserve and demand.

2:00-2:45 pm Virginia Lorenzi, Manager - Imagine Healthcare Interoperability

Virginia has been working with health IT for almost 3 decades.  She has spent most of her career specializing in healthcare interoperability with some software development and consulting experience and 25 years in the NewYork-Presbyterian hospital (NYP) IT department focused on solving real-world interoperability problems using a variety of healthcare interoperability standards.  For the past decade she has served as NYP’s regulated Health IT subject matter expert for and has been instrumental in the rollout of the EHR Meaningful Use and Promoting Interoperability across the enterprise. 

She is a champion of standards-based interoperability and is especially proud of her 25 years of active service to Health Level Seven as a standards developer and educator and 4 years supporting Integrating the Healthcare Enterprise. She also represents NYP in the CARIN Alliance which focuses on interoperability from the consumer perspective.

In addition to her role at NYP, Virginia is a member of the faculty in the Department of Biomedical Informatics at Columbia University.  She runs the Certification of Professional Achievement in Health IT, a 12 credit blended learning intensive training program.  She also serves as the department’s standards educator and expert – most recently providing advisement to all research using HL7 FHIR. 

Finally, she is involved in numerous HIT community efforts through work with HIMSS, AMIA, and the NY Academy of Medicine. She has been asked to present at numerous conferences, to deliver testimony in Washington, and guest lectures on interoperability at several colleges.  

3:00-4:00 Regina Holliday discusses advocacy and the Walking Gallery

4:00- 4:15 Caitlyn Allen, MPH Director of Engagement, Patient Safety Authority, Managing Editor for Patient Safety

Caitlyn Allen is the Director of Engagement for the Patient Safety Authority. In this role, she sets and guides strategies for all external Authority engagement, including communications, publications, social media, patient engagement, and public relations. She also serves as Managing Editor for Patient Safety, the Authority's quarterly peer reviewed journal.
She previously served as the Project Manager for Patient Safety at Jefferson Health. In that role, she was involved in many multidisciplinary initiatives to reduce harm and improve safety, including- oversight of the Leapfrog Hospital Safety Survey, development of a mobile-friendly app for wound care education, and implementation of the organization's first sepsis symposium. She was also the only non-physician elected to serve on the House Staff Quality and Safety Leadership Council and developed the organization's first quality and safety specific annual report.
Prior to that role, Ms. Allen served as Project Manager for Wills Eye Hospital. During that time, she worked on several initiatives to improve patient care, including- assisting with the conversion of Wills Eye from an ambulatory surgery center to an inpatient hospital, participating on the Communications team, and serving as the organization's Patient Safety Officer.

She received her Master's in Public Health from Drexel University and her BA in Economics from The College of New Jersey. She is also certified as a master TeamSTEPPS™ trainer.

4:15-4:30 Robb Fulks, Patient Story

4:30 Regina Holliday closes the regular conference session and prepares attendees for an evening of music. 

We thank Energizing Health as our sponsor for our evening of music at The Chapel

The Walking Gallery Gathers 6:00-10:00pm 
At 6:00 pm we will gather at the Casselman River Bridge for a group shot of The Walking Gallery and the conference attendees.  We will then walk across the historic bridge lit with over 500 luminaries.  We will have our evening events in the Chapel; this portion of the conference event is open to the public and does not require tickets. 
6:00-7:00 pm George Skiles will play guitar 
7:00-7:45pm Local Musicians Sean and Debi Beachy will play jazz, voice and piano.
7:45-8:00pm Josh Rubin serves as Program Officer for Learning Health System Initiatives at the University of Michigan Medical School’s first-of-its-kind Department of Learning Health Sciences.  He will present a few words as a sponsor.
8:00-9pm Ross Martin, MD will sing several songs focused on healthcare.
9:00-10:00 pm The Durst Brothers will perform a mix of Blue Grass and Gospel

Conference Day 3
July 20, 9:00am to noon. We meet at Salt and Pepper Studios, 189 Main Street. This day we will break into small groups to work on mentoring, individual coaching sessions, poetry and painting Walking Gallery jackets until noon.

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