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Tuesday, September 11, 2012

Cerner on September 11th


I often paint at medical conferences in the back of ballrooms or on the exhibition floor.  When I was painting at the HISA conference in Australia, a lovely woman came over to my easel.  She looked at my work and noticed I was painting in the Cerner booth.  She told me she had a story she wanted share with me about a Cerner conference she attended many years before.  That story was so powerful I asked if I could paint it on her jacket so she could join The Walking Gallery.  She said yes.

This is “The Right Thing” a jacket for Lissa.

CIMG0051

On September 11th, 2001 Lissa was at a Cerner health conference in Kansas City entitled “Crossing the Chasm.”  It was a typical conference day and sessions began early.  Doctors and nurses from all over the US were there.  As the morning progressed word spread through the room that something horrible had happened in New York.  Caregivers from the New York area began to call airlines trying to fly back to help.  Quickly they and the folks at Cerner found out all flights were grounded. 

Then the leadership at Cerner contacted a bus company and chartered buses to drive attendees back to New York.  They announced that the buses would be there soon and anyone who wanted to get back could return home in this fashion. 

Next they must decide what to do.  The room was full of attendees and there were speakers prepared to speak; yet at the same moment tragedy was unfolding.  Cerner decided the conference must continue so they set up a screen showing the Twin Towers as speakers spoke of crossing the quality chasm.

Speaking while they die

Can you imagine that?  Right beside a speaker addressing the future of medicine and the chasm in care, a building burned and lives were extinguished in real time.  This was such a powerful moment.  This is the heart of the matter.  When we talk of death at medical conferences it is often hidden behind statistics and bar charts and does not have the visceral impact of life destroyed before our very eyes.

Yesterday, I had the privilege of hearing Clay Patterson from Cerner speak as part of a vender panel at HHS.  He did not tell us about the newest module available on a Cerner system.  He told us about the challenging care and poor communication his family experienced before his grandmother’s death.

In less than two weeks Cerner will again host a conference in Kansas City in September.  It will be the Partnership with Patients Summit.  We will meet there and discuss the chasm of care with doctors, venders, nurses and patients.  And I hope to see some of you there.  I hope to hold you in my arms and remember all of those we have lost.

People have asked me, “How did you get Cerner to host this?”  I responded, “I asked and they said yes.”  It was the right thing to do.

Saturday, September 8, 2012

Essays for Partnership With Patients Travel Fund

Today is the deadline for the Patient Travel Fund Submissions for Partnership WIth Patients Summit in DC.  One requirement of submission was to post the essays onto a blog, so I am posting these here:

From Evelyn McKnight

Thank you for the opportunity to apply for a travel scholarship to the upcoming Partnership for Patients Summit. I welcome the chance to attend and participate in the Summit.

Because of my work, starting in 2007, which is centered in patient advocacy with a concentration on prevention of outbreaks of blood-borne pathogens in medical facilities, I believe I am the ideal candidate for a travel scholarship. Thank you in advance for your consideration. 

You ask a couple important questions—what I can offer to the Summit and what the Summit can offer back to me.
Hepatitis Outbreaks’ National Organizations for Reform (HONOReform) Foundation, our national organization based in Nebraska and active on Capitol Hill, has become a “gathering place” for men and women throughout the United States who have been affected by outbreaks of hepatitis C. I hear from these victims frequently. Personally and through HONOReform, I try to do all I can to be helpful. As someone who was infected with hepatitis C while receiving healthcare, I understand. From being there and from watching and helping others, I have developed a good understanding of the process of grieving and getting better. 
Late last year, we added two patient advocates to our board of directors. I am in communication with more than a dozen patient advocates, all of whom urge us to continue working on safeguarding the medical injection practice. In addition to sharing my story and what I’ve learned along the way, I welcome the chance to offer is a connection to the many advocates whom I work alongside…as a way to develop critical mass among all patient advocates. 
Empowerment through thorough messaging is important to a grass roots organization like ours. I have no doubt the PFP Summit will help me in a variety of ways. But comparing notes on messaging and outreach is an area that is on my mind right now. I believe this will be part of what the PFP Summit will offer back to me. I look forward to meeting more advocates and learning how they spread the word—and sharing how HONOReform remains active in this way. 
I am glad to be part of the developing PFP “Patient and Family Engagement Network” and the other groups and committees of which I’m a part. But I am especially interested in being part of the upcoming PFP Summit, and I ask you to please consider me for the travel scholarship. 
In the meantime, I welcome the chance to detail more of my work at HONOReform—the ways I strive to continue to make a difference in preventing healthcare associated infection. 
I would be honored to be included. Thank you for all you do. Please contact me anytime.

Evelyn V. McKnight, President
HONOReform/HONOReform Foundation

evelyn@HONOReform.org
www.HONOReform.org
www.OneandOnlyCampaign.org
www.twitter.com/honoreform
Facebook: HONOReform
www.ANeverEvent.com

Working to ensure that every medical injection is a safe one

The second essay is from Winnie Tobin:


I am writing to request a travel scholarship for the Partnership with Patients Summit in Kansas City.  I have been the Communications Director at MITSS (Medically Induced Trauma Support Services) for the past 9 years.  MITSS is a non-profit headquartered just outside of Boston, Massachusetts, whose mission is to Support Healing and Restore Hope to patients, families, and clinicians who have been impacted by errors and adverse medical events.  I am also a family member who has stood by helplessly as a loved one required two brain surgeries due to a preventable surgical site infection and an inaccurate lab report.
I came into the patient safety and quality arena quite by chance back in 2003 when I met Linda Kenney.  At the time, Linda was just starting MITSS, and a mutual friend suggested that in my “free time,” I could help Linda “stuff some envelopes.”  My children were transitioning to middle school, and I was pondering my next steps, unsure about what the future would hold.  I had majored in business/marketing in college and worked in the legal field for 10+ years, but now I was at home raising my two sons.   Linda’s story of a near fatal anesthesia block resonated with me on a profound level, and, personally, we connected immediately.  The rest, as they say, is history.
These past nine years have been an extraordinary journey, though not always easy.  Many times the barriers seemed impenetrable -- too deeply entrenched in a healthcare system not accustomed to listening to nor incorporating the voice of its patients.  But, with persistence and perseverance, the MITSS message of supporting everyone involved in an adverse event has picked up traction not only locally and nationally, but internationally as well.  It is this firsthand experience -- what has worked well, what didn’t, and how it all unfolded -- that I would bring to the Summit.  I have acquired and sharpened the skills (writing, editing, public speaking, social media, program production, event planning, website development, etc.) that patient advocates need to be effective. 
The most important things, though, that I would bring to the Summit are my ability to listen and eagerness to connect with others working in this space.  I have spoken with hundreds of people who have been injured by adverse events.  I hear their pain, frustration, and isolation on a daily basis.  We are always looking for additional resources to offer our clients, and by attending the Summit, I would hope to expand our network.  I know, too, that there is power in numbers and am excited about coming together to form a collective patient voice.
What I am hoping to gain from attending the Summit is simply to learn, and this would be an extraordinary opportunity for me to do so.
As MITSS strives to provide our services free of charge to our clients, we do not have a travel budget for ourselves.  Therefore, I would need assistance with travel costs in order to attend the Summit.  Thank you.
Winnie Tobin

And from Nikolai Kirienko


Why should you be the person who receives the scholarship? 

On a long, and often solitary patient journey, the greatest relief I've found amidst the losses of a relentless chronic illness are the riches of empathy and friendship I've shared with fellow patient voyagers who 'get it'.  (In solidarity with those in the disabled and patient communities who also struggle to afford these events on fixed income, I would like to be considered for this scholarship only if it would otherwise go left unclaimed.)

What can you offer to the people you connect with? 

Living with a chronic illness, and coping with the realities of invisible symptoms and routine daily setbacks can be a lonely and isolating experience.  With thousands of hours of experience navigating the extremes of life in the hospital, I hope I can offer the understanding of someone who has been, and is very much still 'there'; on an epic journey through high cost, high risk chronic care.  The value I hope to offer is the empathy and encouragement of someone who understands, from experience. 

What can they offer you? 

A community of folks committed to the healing possibilities of patient empowerment through expanded digital participation in health is a uniquely supportive environment that I look especially forward to experiencing in Kansas City.  I hope to learn from the advocacy and experience of other patients who have faced overcome many of the same challenges I'm still attempting to master.

What do you hope to do with what you learn?

I hope to improve my ability to communicate, especially around the many issues for which patients must collaborate, if we would like to see our agenda represented, from our clinical appointments to national health IT policy. 

Thank you again for organizing this wonderful event, and for your consideration of this patient travel scholarship to Partnership with Patients.  

Sincerely, 
Nikolai Kirienko

Saturday, September 1, 2012

Bone Black


Ashes.

They have always been part of our lives.  We sang of them in our nursery songs.  We heard our mothers speak of a princess who labored in cinders and dreamed of a prince.  And as we grew, ash became less magical and more mundane.  It was in our science lessons.  We snickered to hear that messy wood ash was needed to make soap.  That seemed so wrong, a contradiction terms.

The years past and I found ash was needed to make so many things.  Cinder blocks are called cinder blocks because they contain ash.  The ash makes them strong yet light: a perfect building material.   And I learned about charcoal.  I learned the silky beauty of writing with a charred vine or the compressed stick.

The years past and I grew beyond drawing with charcoal and focused on paint.   One day I found a new black paint that quickly became my favorite.  The color was so deep and dark.  You could fall into it and never return.  I wondered at the color’s name: Bone Black.  I thought it a joke, for bones are off-white like ivory.  Bones are the color of old lace… unless you burn them.

This is “Bone Black” a jacket for Catherine Fairchild.   We were introduced to each other by Susannah Fox who interviewed Catherine about rare disease.  She mailed me this jacket months ago, but time had passed and yet the jacket hung within my closet.  It hung on its hanger, the color of bone beside jacket after jacket in black. 

"Bone Black" a jacket for Catherine Fairchild

As I learned more about Catherine and her story I could see why she would pick this color, this jacket.  Catherine is the mother of two wonderful children: Ella and Billy. 

Ella was already a rosy-cheeked toddler when Billy was born in 2002.  The family was happy that Ella would soon have a baby brother.  Catherine had a routine mid-term sonogram during her pregnancy and noticed the report contained CPC codes.  She did not know what that represented so like any good e-patient she registered for 48-hour JAMA subscription.  She found articles that explained those codes were soft markers for many developmental disorders.   She then went through a more thorough sonogram that was inconclusive. 

As she neared term Catherine grew concerned that the pregnancy was not doing well.  He was not moving, as he should.  Catherine had another sonogram and was told that she would need a C-section immediately.  The placenta was bad, amniotic fluid was gone and without intervention he would not survive.

Billy was 5lbs at birth and within two weeks birthmarks appeared on his back.  She told her pediatrician about the café-au-lait birthmarks. Could it be the sign of some type of disorder? The doctor brushed off her concerns.  BB continued to grow and meet his milestones, but at three years his coordination was sufficiently poor that the special education teacher at school said Billy should see a pediatric neurologist.

Again, tests were inconclusive.

A year later, four year old Billy played really hard with a group of boys and then began to limp.  He had a occupational therapy appointment the next day and the therapist concurred with Catherine’s worries, there was something wrong with Billy. He was x-rayed to determine if he broke a bone. 

The x-rays determined Billy had lesions all over his bones. 


Billy has MAS (McCune-Albright Syndrome) a rare genetic disease estimated to effect between 1 in 100,000 to 1 in 1,000,000.  Characteristics of the disease include café-au-lait marks on the skin, and deformities in the bone known as fibrous dysplasia, and endocrine issues.  Many individuals with this disease suffer multiple bone breaks.   Billy has had several major orthopedic surgeries to address the problems with his bones.

Billy is doing well, though he spends a lot of time in a wheel chair.  He loves legos and enjoys school.  His mother supports him in all his endeavors.  

"Bone Black"

I painted her gown the color of bone.  She stands tall and defiant as wind whips at her gown.  Ella clings to her back and Billy is in her arms.  Billy holds two oversize BB’s as though they are a baby’s rattle. Catherine holds scrolls that represent the law and information.  She is e: empowered, engaged, and expert at the disease she is fighting.  No wind can lift her off her mooring.  She fights for her BB.

I am glad to know Catherine.  I am happy to paint her thus, beautiful and defiant.  I used very little of my favorite black color in this painting.  Her colors are her own.  Bone black is created when bone is burnt at a low temperature, to get white the temperature must be very high.  The crucible purifies the color.

Yes, I think I know why Catherine sent me this jacket in this color.   

Tuesday, August 28, 2012

The Partnership with Patients Agenda


The Partnership With Patients Summit:
The first patient summit in Kansas City supported by crowd-funding, designed using social media with art by Regina Holliday

Patients, Providers and Health Professional from all over the United States will convene in Kansas City, Missouri, from September 21through September 23 to present speeches on Health Information Technology, Patient Safety and Quality and Media and the Message of Patient Advocacy. 

Partnership With Patients

For too long patient input has been an afterthought in health policy.

We are changing that.

This summit focuses on education, networking and partnership—of patients, providers, vendors and explains the relationship between government policy and patient advocacy.  Conference attendee’s will suggest ways to promote patient participation, learn about the effect of change and growth in the tech sector on patient advocacy, and use social media to further the voice of the patient in national health policy.

What makes this a must attend event?

The Partnership with Patients Summit is organized completely using the free tools of social media and by a loose confederation of advocates, providers and vendors volunteering their time.

The registration page is on eventbrite: http://partnershipwithpatients.eventbrite.com/

Partnership With Patients partially crowd-funded by both Medstartr and Health Tech Hatch 

The non-profit partner is the Society for Participatory Medicine who is helping fund patient travel scholarships, http://participatorymedicine.org/about/donations/

Internationally recognized patient speakers such as Dave DeBronkart, Trisha Torrey and ReginaHolliday will be presenting.



The conference hashtag is #cinderblocks on twitter



                                                         #     #    #     #     #




Thank you to our Sponsors!





Partner logos healthCamp Logo


Event promotion, Patient Travel Funding and Sponsoring Lunch Saturday
Intouch_square_green


Advo-Connection


pocket health



Medstartr




HealthTechHatch
       

Thank you all of our other sponsors  Sponsors Revised M3


Friday 21, The Walking Gallery: 6:00pm to 8:00pm
To begin this conference The WalkingGallery gathers on Friday night Sept 21, Kansas City Marriott Downtown 200 West 12th Street, Kansas City, MO 64105 light refreshments will be served

Twitter hashtag: #TheWalkingGallery

The patient voice — in the form of the Walking Gallery of Healthcare art event —will arrive in Kansas City as walkers from throughout the nation will display the stories painted on their backs of business jackets. Internationally recognized patient rights art advocate Regina Holliday will debut her latest works. 
  
"It will be exciting to see so many new members of the Walking Gallery gather for this event. At this point, we have 160 walkers around world representing the patient view within medicine. I am proud to be a member of the Walking Gallery," said Holliday, the Washington, D.C.-based patient rights arts advocate.


Saturday 22, Registration begins at 7:30am
Cerner will host the Summit Saturday and Sunday at their educational facility at Cerner Educational Building 6711 NE Birmingham Rd  Kansas City, MO 64117
Coffee and breakfast will be served in the exhibition area 

Saturday Morning 8:00 am in room A  (this room we will record.)

Panel presentation by Society for Participatory medicine 8:30-9:10 
A series of 4x4 presentations from sponsors 9:15-9:45
Explain dividing into three tracks

HIT and Policy
Session 1
10:00-11:45 am first group of 25 patients go on shuttles to experience theatre on Cerner Campus
Session 2
12:00-1:45 pm second group of 25 patients go on shuttles to experience theatre on Cerner Campus

Patient Quality and Safety Room A

Session 1
10:00-10:45: Pat Mastors and Partnership with/for Patients
Session 2
11:00-11:45: Patient Speakers and SpeakerLink Panel: Trisha Torrey, Dave DeBronkart, Tiffany Peterson, Kait B Roe

Media and the Message Room B
(Social Media/Activism/Public Speaking)

Session 1 Bunny Ellerin  on media
10:00-10:45
Session 2 Social Media speaker TBA
11:00-11:45

Lunch
11:45-12:15

HIT and Policy Room C
Session 3
2:00-2:45 Roy Foster: HIT and Meaningful Use 101
Session 4
3:00-3:45 HIT Pannel: What does tech have to do with it? Rosh Rubin, Joe Ketcherside and Jim Hansen

Patient Quality and Safety Room A
Session 3
12:30- 1:45 Device Safety Panel: Tobia Gilk on MRI, Joleen Chambers on Implantable Devices
Session 4
2:00-2:45 Ann Becker-Schutte, PhD and Bart Windrum on Hospice and End of Life
Session 5
3:00-3:45 Jari Holland Buck on Patient Safety

Media and the Message Room B
Session 3
12:30 -1:45 W. Ryan Neuhofel, DO, MPH: Doctors and Social Media
Session 4
2:00-2:45 Lisa Fields: Rocking the Power Point
Session 5
3:00-3:45  Michael Millenson on new media meets traditional media

Closing Remarks in Room A
4:00-5:00

Dinner Served 5:15-6:15

Ignite-style speeches, (20 slides 5 minutes) begin 6:30-8:00

Shuttle back to Marriott 8:15

  
Sunday Registration begins at 7:30 am Breakfast in exhibition space

HealthCamp, an unconference will be held on Sept 23rd in Kansas City as part of the Partnership with Patients summit. Mark your calendars for the weekend of September 21st -23rd. HealthCamp will cap off an exciting weekend at Cerner’s educational facility in Kansas City. Continuing the innovation learning approach from the previous days, patients, physicians, nurses, technologists, health system and policy leaders, payers and suppliers will create session topics the day of the event focused on "Empowering Patient Engagement." The unconference process and the Center for Total Health itself will create a flexible and energetic collaborative environment for participants. Check out the HealthCamp Foundation home page for other HealthCamp information. 



Greeting: 8:00 in room A
Break into unconference sessions 9:00 am/patient speaker boot-camp
Session rooms B,C,D,E,F,

Patient Speaker Boot camp stays in room A to record speeches
9:00 am to 12:00

Grid times for Unconference
9:00am -9:45
10:00-10:45
11:00- 11:45
12:00- 12:45 Lunch and good byes to early departures Exhibition space
1:00pm - 1:45
2:00-2:45 Wrap up in Room A

The conference hashtag is #cinderblocks on twitter


For more information about the summit and to receive media access with press credentials, contact @ReginaHolliday on twitter or 202-441-9664

About Partnership With Patients
This conference is two-fold in its mission. We will be working on strategies for a grass roots support the Partnership for Patients campaign. We will also help enable patients by providing a place to network, learn and grow as patient advocates that focus on health policy. You can read more about this on our website 

Calling all Patient Advocates


Calling all Patient Advocates!!!

Want to come to the Partnership with Patients Summit in KC September 21-23, 2012?  Need help with funding to get there?  The Society for Participatory Medicine a 501c3 non-profit is creating a scholarship fund and Pat Salber, MD decided to help.  She is currently launching a crowdfunding site called Health Tech Hatch that will enter public beta on Sept. 4.  It is currently in private beta and people are already pledging to support the fund.  She writes about the program here

You can register for the Partnership With Patients conference here.

Please spread the word!  This is a conference that is being designed with patients in full partnership with providers and venders and I really hope you can attend. 

So to make this super clear (with a little help from the amazing Trisha Torrey on editing)



Are you a patient who would like to apply for a travel scholarship to the Partnership With Patients Summit?

The Society of Participatory Medicine will be awarding 10 scholarships of $500 each.  Here are details and how to apply:

Write a (no more than) 500 word essay of why you should be granted a travel scholarship to attend the Partnership With Patients Summit.  Why should you be the person who receives the scholarship?  What can you offer to the people you connect with?  What can they offer you? What do you hope to do with what you learn? 

If you have your own blog, then post your essay on your blog, and tweet the link to Regina Holliday ( @ReginaHolliday) or post the link on her Facebook page (http://www.facebook.com/regina.holliday )

If you do not have your own blog, then send the post, contained in an email (not attached) to Regina at  reggieart123@yahoo.com  She will post your essay here on the Partnership with Patients website.

Deadline for submission is midnight, pacific time, September 8, 2012.

The essays will be reviewed by the committee at the Society for Participatory Medicine and winners will be notified by September 16.

Good luck!


Questions?  Contact  Regina Holliday at Partnership with Patients


SpeakerLink.org

Saturday, August 25, 2012

Invasion of the C.Diff


I often do things that frustrate my children.  Whether is singing loudly off-key or ruffling their hair in front of their friends, my response to their complaint is always the same.  “When I stop doing this you will know the pod people got me.”  I say this even though the children have no clue what the pod people are.  I say this even though in my deepest heart the pod people scare me.

Of all the films I saw as a child, two frightened me the most.  I am not talking about the surprised jump scare that is staple of the slasher movie.  I am talking about the kind of intellectual scare that keeps you up at night. The kind of scare that makes you plot and plan what you would do if you found yourself stuck within this horrific story.

Invaders from Mars” released in 1953 was a film you would not want to be stuck in.  The story followed a young boy who sees an object crash from the sky.  His father goes to investigate and comes back different.  He no longer acts like his father.  The boy sees more and more of the townsfolk change.  It is terrifying; no one is admitting that people are being replaced with doppelgangers.

The next horror epic etched within my mind was “Invasion ofthe Body Snatchers” 1956 and 1978.  In this tale people insist that imposters have replace their loved ones but the main character does not want to believe them at first.  He then finds out that giant plant pods contain alien replicas of earthlings.  These pod people replace and destroy their human counterparts.

Both films depict the body human being invaded and destroyed, first as an individual then as a species.  Which brings me to Pat Mastors and her jacket “Invasion of the C. Diff.”

"Invasion of the C. Diff." for Pat Mastors

Pat is an amazing advocate and speaker.  She is a photogenic beauty who was a television reporter before entering the world of advocacy.  In 2007, her whole world changed due to the invasion of a spore.

Have you heard of C. Difficile?   For the average Joe-citizen the answer is no.  Many people have heard of super-bugs and perhaps MRSA, but c. diff is often left out the media limelight.  I learned about it a few years ago when I was designing a painting.  I was talking to environmental specialist who works in a hospital.  He told me of all the nasty infection agents, he was most afraid of c.diff in the spore stage.  It was so hard to kill and most of his cleaning agents would not destroy the shell of this invader.

In about 3% of healthy adults and 70% of healthy infants c.diff is a naturally occurring bacteria in the intestines.  Its growth is kept in check by other bacteria.  When patients take an antibiotic, the bacteria balance is upset and many of the residing bacteria die.  If a patient ingests c.diff spores while they lack the necessary competing bacteria the c.diif bacteria will experience explosive growth.  The patient will experience flu-like symptoms and diarrhea.  The infection can grow to the point that patient is in anguish and is estimated to result in death in 25% of the elderly frail who contract the infection.

Pat Mastors knows all of this because in 2007 her father fell.  He got up in the night and fell down the stairs.  He was injured in the fall and needed surgery performed on his neck.  He acquired c. diff and died six months later. 

Pat was outraged.  No one seemed to know about c.diff and it was so very dangerous.  She began to blog about it.  She lay awake at night and pondered what could she do to protect people.  She created a plastic sleeve to cover TV remotes in hospitals.  The surface of the TV remote is one of the leading culprits in infection.  She tried to talk with hospital staff about needed safeguards to prevent hospital-acquired infections.

But like the plot of a scary science fiction movie people were not listening.  They ignored this danger from within and the idea that people were being colonized.  Pat was alone in her knowledge.  So within Pat’s painting, I place her staring in worry at a nameless woman in her pod.  Pat knows what will happen when spores descend.

Invasion of the C.Diff.

Not long ago Pat showed me the Patient Pod she created.  She has learned the lesson of her enemy and knows the strength of an impervious shell.  She created a plastic sleeve that mounts on a hospital bedrail with a special clip.  Here you can put your personal things. A photo of you and your family, your cell phone and some plastic sleeves for your remote.  You can keep your things safe and clean.  You can wash the pod off with a bleach solution that kills spores.

There are only two ways to fight c. diff: keep surfaces clean and limit overuse of antibiotics.  Pat is doing all she can as a patient advocate to save lives by providing clean surfaces.  Pat listed herproject on Medstarter.  I urge you to fund it.  She is saving lives and spreading awareness.  I will support her in her mission and if I ever stop doing that you will know …the pod people got me.

Thursday, August 23, 2012

The Walking Gallery in 17 Countries

The Walking Gallery is walking around the world and has members in 17 countries.



We also have Walkers in 40 states in the US. I hope before the end of 2024 to see a walker in every state. If you would to join us in The Walking Gallery here is the link: http://reginaholliday.blogspot.com/2016/03/how-do-you-join-walking-gallery.html

If you want to donate to support our movement, you can do so here: https://www.gofundme.com/f/10th-anniversary-of-the-walking-gallery

(There are currently 25 jackets in my to-do pile and hopefully some of them will be from states that do not have walkers, but if you know of excellent walkers or potential gallery artists please send them my way!)

We have 468 walkers wearing 520 jackets and each day some of them are walking and spreading the word about truly patient centered care and positive change in the world of medicine.

We also have 52 artists painting about these stories.

Thank you all! 


The artists of the gallery: (Children and Teen artists are in bold face)

1. Regina Holliday 431 jackets
2. Isaac Holliday, 2 jackets
3. Becca Price, 1 jacket
4. Miriam Cutelis, 1 jacket
5. Ess Lipczenko, 1 jacket
6. Ben Merrion 1 jacket
7. Courtney Mazza 6 jackets
8. Michele Banks 1 jacket
9. Megan Mitchell 1 jacket
10. Robert J. Filley 3 jackets
11. Anita Samarth 1 jacket
12. Mary Welch Higgins 2 jackets
13. Richard Sachs 2 jacket
14. Jonah Daniel 1 jacket
15. Fred Trotter 1 jacket
16. Leela 1 jacket
17. Gayle Schrier Smith, 1 Jacket
18. Moira Simms, 1 Jacket
19 Joan Holliday 1 Jacket
20 Adalyn 1 jacket
21.Chris Chan, 1 jacket
22. Amy O'Hanlon 1 jacket
23. Vera Rulon 3 jacket
24. Jessica Nicula 2 jacket
25. Nikai, 1 jacket
26. Deon, 1 jacket
27. Daquane, 1 jacket
28. Olivia Dias, 1 jacket
29. Donnell Bonaparte, 1 jacket
30. Hazel F, 1 jacket
31. Rachel Fields, 1 jacket
32. Zoe Carr, 1 jacket
33. Thomas Richardson, 1 jacket
34.  Tamela Mack, 1 jacket
35.  Julia Anderson, 1 jacket
36. DJ Hamilton, 1 jacket
37. Jenn Toby. 1 jacket
38. Camala Walling, 1 jacket
39. Jordan Lanham, 1 jacket
40. Josh Miller, 1 jacket
41.  Te'j Matthews, 1 jacket
42.  Anthony Ziegler,1 jaket
43. Shannon Shine, 2 jackets
44. Melody Smith Jones, 3 Jackets
45. Kay Seurat, 1 jacket
46. Danny McGinnest Jr., 5 jackets
47. Janice Lynn Schuster, 1 jacket
48. Kathleen R. Drake, 1 jacket
49. Ileana Balcu, 1 jacket
50. Virginia Lorenzi, 1 jacket
51. Soojin Jun, 1 jacket
52. Ginny DeBronkart, 1 jacket


DC Health Week HealthCamp - Walking Gallery 13160

Heaven:

In 2016 we had our first death in the Walking Gallery.  We loss Jess Jacobs.  Now several members of the Walking Gallery have died.  They walk where we can no longer see them.  If you see an asterisk by a name that person walks with us in spirit. 


Australia
1 Heather Leslie, Melbourne
2 Louise Schaper, Melbourne
3 Sam Bruinewoud, Melbourne
4 Catherine Crock, Melbourne
5 Carolyn Der Vartanian, Sydney, NSW
6 Michelle F Davis, Sydney, NSW
7 Lissa Smith, Sydney, NSW
8 Sanya Turalj, Sydney, NSW
9 Tara Dimopoulos Bick
10 Kath Mazella, Perth



Louise Schaper

Belgium
Vincent Keunen, Liege

Canada
1 Colin Hung, Toronto, Ontario
2 Colleen Young, Toronto,Ontario
3 Carolyn Thomas, Victoria, BC
4 Natrice Rese, Timmins, Ontario
5 Kathy Kastner, Toronto, Ontario
6 Annette McKinnon, Toronto, Ontario
7 Kelly Grindrod, Kitchener,Ontario
8 Catherine Wilhelmy, Quebec
9 Marie-Michele Brodeur, Sherbrooke, Quebec
10 Marie-Claude Poulin, Quebec
11 Wendy Station, North Vancouver* March 9, 1955- October 25, 2020  
12 Francisco Grajales, Toronto, Ontario
13 Deb Maskens, Guelph, Ontario
14 Chris McCamic, Ottawa
15. James Goertzen, Thunder Bay, Ontario
16. Rob Anderson, Sudbury, Ontario
17. Erin Cameron, Thunder Bay, Ontario

China
Lissanthea Taylor, Shanghai

Ecuador
Jari Holland Buck

Greece
Kathi Apostolidis

France
1 Gangadhar Sulkunte
2 Mélanie Péron
3 Catherine Coste, Aix en Provence

Hungary
Bertalan Mesko, Budapest

Netherlands
Jim van den Beuken, Nijmegen Area

Kenya
Alice Mwongera

Portugal
Morgan Stanley-Kominers

Senegal
Kevin Ado

Spain
Fernando Martin-Sanchez, Madrid

South Africa
Vanessa Carter, Johannesburg

Switzerland
Christine Bienvenu, Morges

United Kingdom
1 Andrew Spong, Rustington, West Sussex, England
2  Catherine Coste, London, England
3 Jon Dowell, Scotland
4 Gina Neff, Oxford

United States of America: Districts/Commonwealths and Territories

 

1.                               Alabama
     Joe Lavelle, Fairhope

2.                              Alaska

3.                              Arizona
     Lorre Wisham, Tucson 
     Teresa Younkin 


4.                              Arkansas
      Lance Manning, Fayetteville 

5.                              California
1 Al Nikolai Kirienko- Berkley
2 Jamie Inman, Hollister
3 Christine Kraft, Los Gatos
4 Alan Greene, San Francisco
5 Matthew Holt, San Francisco
6 Katherine Arbansin, San Francisco
7 Karen Herzog, San Francisco
8 Manny Hernandez, San Francisco
9 Danielle Cass, San Francisco
10 Roni Zeiger, San Francisco
11 Amy Tenderich, SanFrancisco
12 Julia Hallisy, San Francisco
13 Ian Eslick, San Francisco
14 Chris Chan, San Francisco 
15 Richard Anderson, San Francisco
16 Christopher Snider, San Francisco
17 Alex Albin, Monterey
18 Pat Salber, Lakespur
19 Christian Liu, Los Angeles
20 Liza Bernstein, Los Angelos
21 Matthew Listiak, Los Angeles
22 Martine Ehrenclou, Los Angeles
23 Gregg Masters, San Diego
24 Katerina Jackson-Suchkova, San Diego
25 Becca Price, San Diego
26 Charles Denham, Palo Alto
27 Larry Chu, Palo Alto
28 Zoe Chu, Palo Alto (honorary)
29 Kristen Andrews, Monrovia
30 Amanda Greene, Culver City
31 Eric Topol, San Diego
32 Susan Hull, Healdsburg
33 Eileen Propp, San Ramon
34 Ellen Rose
35 Kate Munger, Inverness
36 Lori Marx-Rubiner* July 26, 1966- August 22, 2017
37 Susan Eller, Los Gatos
38 Rajiv Mehta, Mountain View
39 John Mattison, Playa
40 Teresa Masters, Oceanside * June 8, 1931- May18, 2024
41 Wen Dombrowski, LA
42 Bettina Experton, Del Mar
43 Bridget Duffy, San Francisco
44 Bryanna Gallaway, San Francisco
45 Kait B. Roe, Greenbrae
46Amanda Michelle Jones, Long Beach
47 Deven McGraw, Mountain View
48 Steven Lane, Palo Alto


6.                              Colorado
1 Kathy Nicholls, Pueblo
2 Ben Miller, Denver
3 Bart Windrum, Boulder
4 Elaine O'Bleness, Greeley
5 Adalyn, Denver
6 Fred Masoudi, Denver
7 Brian Be, Denver
8 Tracy Walsh, Basalt
9 Cathy Desautels, Carbondale
10 Erika Hanson Brown, Denver
11 Mary Anne Sterling, Denver

7.                              Connecticut
      1 Matthew Browning
      2 Randi Oster, Fairfield
      3 Alan Manning, Milford
      4 Denise Theil, Milford
      5 Steven F. Horowitz, Stamford
      6 Lisa Donnarumma, Derby
      7 Danielle Swift, Orange
      8 Kenneth Dobuler, Derby
      9 Jim Kinsey, Hamden
      10 Harlan Krumholz, New Haven
      11 Michael Bennick, Branford
      12 Frances K. Grace, Wilton
      13 Mary P. Griskewicz, Madison
      14 Jimmy weeks, New Haven

      

8.                              Delaware
      Jo Hamilton, Rehoboth Beach



9.                              #hcdc I'm in there somewhere #epicenter 

District of Columbia/Greater Washington Area
Valarie Barnes
Ann Bartlett
Dominique Beatty
Karen E. Blair
Susan Cantrell
Donna Cryer
Jodi Daniel
Jonah Daniel
Ladd Everitt
Lisa Emrich
Ted Eytan
Robert Filey
Susannah Fox
Jon Francke
Marsha Goodman-Wood
David Hale
Mary Welch Higgins
Lindsey Hoggle
Alisa Hughley
Karen Hwang
Jess Jacobs*  October 4, 1987- August 15, 2016
Leroy Jones
Nicole Kemper
Marilyn Langfeld
Howard Liebers
Courtney Mazza
Frankie
Jake Miles-McLean
Robin Miles-Mclean
Ben Merrion
Megan Mitchell
Farzad Mostashari
John O’Brien
Lauree Ostrofsky
Todd Park
Elizabeth Prevou
Abigail Pritchard
Lygeia Ricciardi
Leela 
Anita Samarth
Leila Samy
Josh Seidman
Emily Stewart
Liz Sherer
Chris Timm
Teresa Titus-Howard
Carol Torgan
Melinda Whatman
Trenor Williams
Eunita Winkey
William Wolf
Whitney Zatzkin
Caleb Picard
Erina Moriarty
Hassan Tetteh
Mike Pappas
Fred Trotter

DC Health Week HealthCamp - Walking Gallery 13297

10.                          Florida
1 Chiara Bell, Orlando
2 Carolyn Capern, Orlando
3 Coletta Dorado, Vero Beach
4 Bruce Ramshaw, Cooper City
5 Geeta Nayyar, Miami
6 Randa Peterson, Tallahassee
7 Mandi Bishop Meyers, St. Augustine
8 Andre Carbonell, Tallahassee
9 Jeri Burtchell, East Palatka
10 Trisha Torrey, Orlando
11 Catherine Berg, Destin
12 Tamara StClair, Jacksonville


11.                          Georgia
Donna Scott, Atlanta
Loran Cook, Atlanta
JoAnna Brogdon, Marietta
Allyson Burroughs, Atlanta
Bill Esslinger, Carollton
Sharon Hall, Cumming


12.                          Hawaii
  
      13. Idaho
           
            
14.                          Illinois
Michael Millenson, Chicago
Karen Curtiss, Chicago
JoAnn Klinedinst, Chicago
Martin J. Hatlie, Chicago
Paulo Machado, Chicago
Wendy White, Chicago
Kim Ball, Chicago
Gillian Cappiello, Elmhurst
Leah Grebner, Peoria
Neil Versel, Chicago
Max Stroud, Bloomington
Soojin Jun, Chicago

15.                          Indiana
Michele Behme, Indianapolis
Cathy Collet, Indianapolis
Brian Dixon, Indianapolis
Tom Krohn, Noblesville
Cherise Shockley, Indianapolis 
Gabriela Wilson, Evansville
Leigh Anne Naas, Indianapolis
Jerry Matczak* November 14, 1962-February 2, 2017
Ignacio Edlm, Indianapolis 

16.                          Iowa
     Tom Evans, Johnston
   

17.                          Kansas
     Ryan Neuhofel, Lawrence
     Corinna West, Kansas City
     Casha Mills, Manhattan 
       

18.                          Kentucky
Ted Smith, Louisville
Kathy Neider, Louisville 

19.                          Louisiana
      Catherine Fairchild, Baton Rouge
      Troy Absire Sr.,  Lake Charles 
      Melissa Stewart, St. Francisville 
      Martin Johnson, Alexandria
      Karen DeSalvo, New Orleans 

        

20.                          Maine
Andrea Littlefield, Bangor
Shelley Cohen Konrad, Portland
Sue Woods, Portland
Liam Kemp, South Portland

21.                          Maryland
Maumi JC Chatterton, Baltimore
Mark Scrimshire, Baltimore
Karen Linder-Staubs, Baltimore
Nikai, Baltimore
Deon, Baltimore
Daquane, Baltimore
Donnell Bonaparte, Baltimore
Hazel F., Baltimore
Abdur Rahim Rahmaan, Baltimore
Dennis Wagner, Baltimore
Zoe Carr, Baltimore
Tamela Mack., Baltimore
Julia Anderson, Baltimore
Marilyn Mann, Kensington
Peter Levin, Silver Spring
Kym Martin, Germantown
Taylor Martin, Germantown
Joan Holliday, Granstsville
Regina Holliday, Grantsville
Freddie Holliday, Grantsville
Isaac Holliday Grantsville
Emily Shaw, Grantsville
Mia Jones, Baltimore
Aaron Smith, Hagerstown
Nick Van Terheyden, Olney
Michael Dias, Towson
Meryl Bloomrosen, Silver Spring
Shannah Koss, Silver Spring
Carly Medosch, Baltimore
Shannon Shine, Cumberland
Christopher Closson, Cumberland
Vicky Hinebaugh, Oakland
John Hinebaugh, Oakland* May 3, 1968- December 18, 2021
Lisa Cahill Rodriguez, Frederick
Abby Bott, Odenton
Cynthia Dianne Heath, Bowie
Yael Harris, Laurel
Aaron Seib, Germantown
Janice Lynn Schuster, Riva
Debbie Swauger, Friendsville
Amy Klink, Friendsville
Genevieve Morris, Elkridge
Lisa Simpson, Bethesda

22.                          Massachusetts
      1 Keith Boone, Boston
      2 Abigail Boone, Boston
3 Alex Drane, Boston
      4 Nate Osit, Boston
      5 Janice McCallum, Boston
      6 David Harlow, Boston
      7 Don Fluckinger, Boston
      8 Alicia Staley, Boston
      9 Karen MacDonald, Boston
      10 Catherine Rose, Boston
      11 Gonzalo Bacigalupe
      12 Suzanne Carter, Boston
      13 Danny van Leeuwen
      14 Richard Corder, Ipswich
      15 Jonathan Bush, Cambridge
      16 Amy Heymans, Swampscott
      17 Liz Boehm, Cambridge
      18Tami Rich, Ashland
      19 Pat Rioux, Bolton
      20 Matt Fisher, Worcester
      21 Mandy Long, Acton
      22 Alexis Snyder


   
David and Regina

23.                           Michigan

Cindy Throop, Ann Arbor
      Rob Sharrow, Detroit  
      Amy Lynn Smith, Birmingham
      Leslie Rott, Southfield
      Brian Mack, Grand Rapids 
      Danna Merritt, Troy


24.                          Minnesota
Gary Oftedahl, Minneapolis
Victor Montori, Rochester
Steven Baker, Fountain
AJ Montpetit, Rochcester
Judith Zerbe, Edina

25.                          Mississippi

26.                          Missouri
1 Joe Ketcherside: Kansas City
2 Tobias Gilk, Kansas City
3 David Sides, Kansas City
4 Clay Patterson, Kansas City
5 Kourtney Govro, Kansas City
6 Ann Becker-Schutte, Kansas City
7 Brian Carter, Kansas City
8 John Spertus, Kansas City
9 Siobhan Champ-Blackwell, Kansas City
10 Aja La'Starr, St. Louis
11 Adrienne Robinson Drapper, St Louis
12 Kristi Pena, Richland


27.                          Montana
     Nick Dawson, Bozeman

28.                          Nebraska

   Carol Wahl, Kearney

29.                          Nevada 
          Jason Grattini, Las Vegas


30.                          New Hampshire
       Dave deBronkart
       Megan Sargent Grocki, Portsmouth
       Lori Nerbonne, Bow

31.                          New Jersey
1 Ileana Balcu, Woodbridge
2 Mindy Schwartz-Brown
3 Catherine Costa, Morristown
4 Michael Weiss, West Orange
5 David Dubin, Haworth

32.                          New Mexico

33.                          New York
Steven Davidson, Brooklyn 
Jason Bhan, NY
Craig Lipset,NY
Alex Fair, NY
Amy Romano, NY
Dale Ann Micalizzi, Schenectady
Emily Hackel, NY
Esther Dyson, NY
Moira Simms, NY
Sue Ribaudo, NY
Susan Frampton, NY
Mike Riz, NY
Vera Rulon, South Nyack
Anthony Ziegler, Bronx
Alice Loveys, Pittsford
Stacey Conklin, Long Beach
Benjamin Berlin, Staten Island
Riva Greenburg, Brooklyn
Kim Nazi, Coxsackie
Virginia Lorenzi, NY
John Phelan, NY
Gail Zahtz, Pomona
Marie -Michelle Strah, NY
Tzvis Berlin

34.                          North Carolina
1 Richard Payne, Durham* August 24, 1951- January 3, 2019
2 Lisa Fields, Greensborro
3 Sarah E. Kucharski, Canton
4 Liza Sisler, Raleigh-Durham 
5 Andre Blackman, Raleigh-Durham
6 Alice Hughley, Durham
7 James Spicka, Wilmington
8 Melissa Phipps, Winston-Salem
9. Todd Rowland, Chapel Hill
10 Tiffany Peterson, Raleigh

35.                          North Dakota

36.                          Ohio
1 Sunnie Southern, Cincinnati
2 Michael Seid, Cincinnati
3 Laura Kolaczkowski, Beavercreek
4 John Sharp, Cleveland Heights
5 Jenn Lonzer, Cleveland Heights
6 Sarah Cawley, Medina
7 Jenny Pettit, Philadelphia
37.                          
                    Oklahoma
John Krueger, Tulsa
      Esther Fischer, Enid* September 23, 1973- November 3, 2022
      Kimberly Hayes, Sapulpa

38.                          Oregon
1 Lizzie Dunklee, Eugene
2 Amy Birney, Eugene
3 Brian Ahier, Portland
4 Amy Fellows, Portland
5 Helen Ying, Portland
6 Jesika Gavilanes, Portland 

39.                          Pennsylvania
       
Bill Fisher, Allentown
Cindy Fisher, Allentown
Amy Edgar, Allentown
David Lee Scher, Harrisburg
Jane Sarasohn-Kahn, Philadelphia
Mary Ellen Mannix
Koreen Olbrish, Philadelphia
Kate Cartwright-Knodel, Yardley
Ken Congdon, Erie
Mary Cattolico Camp, Upper Holland
Mary Beth Navarra-Sirio, Pittsburgh 
Wanda Cronrath, Kutztown
Steph Hanzl, Whitehall
Mary Jo Shields, Coopersburg 
Christine Kurtz, Catasauqua
John O'Donnell, Pittsburgh
Robb Fulks, Reading
Angela Radcliffe, Huntingdon
Rachel Fields, Huntingdon
Erin Moore, Hummelstown

40.                          Puerto Rico
Antonio Fernandez

41.                          Rhode Island
Pat Mastors, Providence
Kerri Sparling, Providence

42.                          South Carolina
Helen Haskell, Columbia
Mark Johnson, Blue Ridge

43.                          South Dakota


44.                          Tennessee
    
       1 Linda Stotsky, Nashville
       2 Jane Englebright, Nashville
       3 Jason Wolf, Nashville      
       4 Tiffani Doyle, Franklin
       5 Leslie Hayes, Dryersburg
       6 Amy Gleason, Nashville

45.                          Texas
Kenneth Wells, Houston
Joleen Chambers, Dallas
Camea Kirkpatrick, Dallas
Melissa Ariate Jarvis, Dallas
Laura Slayton, Austin
Phyllis Goetz, Grapevine
Clarence "Reggie" Williams, San Antonio
Mike Finley, Texarkana 
Liz Johnson, Grapevine
Stephen Scott, Fort Worth

46.                          Utah 
1 Michelle Litchman, Salt Lake City
2 Lauretta Sechrest, Bountiful

47.                          Vermont  
      Katie McCurdy, Burlington
      Karen Hein, Jacksonville

48.                          Virginia

Josh Rubin, Arlington
      Casey Quinlan-Richmond* August 6, 1952-April 25, 2023
David Collins, Richmond
Richard Upton, Richmond
Angela Lynn- Charlottesville 
Heidi Sitcov, Springfield
       Gayle Schrier Smith, Richmond
      Kimberley Gould Crawley, Ashburn
Robin Strongin, Arlington
      Brandon Jones, Roanoke
      Sally Okun, White Stone.         
      Ilhee Bae, Clifton
      Jan Oldenburg, Richmond


49.                          Washington
Wendy Sue Swanson, Seattle
Dana Lewis, Seattle
Leah Marcotte, Seattle
Corey Spears, Renton
Sherry Reynolds, Seattle

50.                          West Virginia
       Ross Martin, Berkeley Springs

51.                          Wisconsin
     Amy Throndsen, Madison
     Mary Drake, Verona


52.                          Wyoming